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Group Description

This is group is for people who live in Oregon, Washington, or Idaho and who have, care for, or know someone who has Chiari Malformation (ACM), Tethered Spinal Cord (TSC), and/or, Ehlers Danlos Syndrome (EDS). I am the mother of three beautiful children and we all have varying combonations of Chiari I Malformation, Tethered Spinal Cord (of the Filum Terminale family including Occult Tight Filum), and Ehlers-Danlos Syndrome. It is my hope that having people closer to us all geographically will enable all of us to find a support community closer to home thus giving added support to us all. I encourage you to share information (including local medical support) as you have it. If you find links or studies you think might be helpful to the group let me know and I will post them in the Links or Files sections.

If you are looking at this group because you have any of these conditions but do not live in the Pacific North West of the United States please see our sister site listed below under "Related Link" It is an international site for patients of CM1, EDS, and TCS. Family and frinds may join as well.

We started in 2003 are growing quickly. Please spread the word about this site to others in our community.

Group Information

Group Settings

  • This is a restricted group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages require approval.
  • All members can post messages.

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