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According to NIH, celiac is the country's MOST-underdiagnosed disease, affecting about 1% of the general population (one in 141 people - http://bit.ly/CDAC1-1212). (The disease has been identified in all parts of the world, incl. China and No. Africa, but not E. Asia or sub-Saharan Africa.)

Despite the efforts of NIH and others in this country, public awareness of celiac is so low that 83% of American celiac patients don't know they have it.

Another 6% of the people have non-celiac gluten sensitivity (NCGS). NCGS can result in change rated as high as 2 under the Marsh Oberhuber criteria. But causing actual tissue damage (villous atrophy), celiac can result in damage topping the Marsh scale (0, 1, 2, 3a, 3b, 3c).

Another 0.02% have a true wheat allergy.

It's up to each of us to raise awareness of celiac and its standard treatment, the gluten-free diet. To see if you might need to adopt the diet, visit http://glutenfreequiz.com.

CSJVCeliacs is a support group for individuals who live with celiac disease or gluten sensitivity in the central San Joaquin Valley of California - the Fresno, Kings, Madera, and Tulare counties.

CSJVCeliacs has the purpose of giving support for a lifestyle having a diet devoid of "gluten," i.e.: barley, couscous, durhum, einkorn, emmer, farina, farro, kamut, malt, matzo, rye, seitan, semolina, spelt, triticale, udon, and wheat; and all products derived from these grains, except 100% pure distillates (alcohol or vinegar) and a wheat starch not widely available in the U.S.

A gluten-free diet strictly excludes all sources of "gluten." This means the diet eliminates both ingredients and sub-ingredients with any "gluten" whatsoever. To learn more, click on "FOODS..." among our Links.

Indeed we have to avoid many foods. We may sometimes feel unhappy, living in a wheat-eating society. But, sharing our experiences with one another, we learn what foods we may safely enjoy. And we do so knowing and feeling we are happier and healthier!

Group Information

  • 28
  • Celiac Disease
  • Jan 8, 2010
  • English

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