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Group Description

CADASIL is an acronym for Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy. CADASIL is a diffuse disease of small arteries predominating in the brain. It starts during mid adulthood and is characterized by many of the following: recurrent ischemic events (transient or permanent), attacks of migraine with (or without)aura, severe mood disorders, subcortical dementia and, at MRI, a white spread leukoencephalopathy. This is a rare genetic disorder.

The reason I have established this Yahoo Group is to let people know about CADASIL and that those afflicted with it or their loved ones are not alone.

If anyone could help us or if you know of anyone with this disease, let us know about them as we would be interested in contacting them or they contacting us. Also, if you are a doctor or know of any research on CADASIL, please let us know.

Those who are afflicted with this disease and family and friends of those afflicted need the support of each other.

There is also a wonderful web site at http://home.earthlink.net/~cadasil/ created by Billie Duncan-Smith, whose husband is afflicted with this disease. Her site is the only site I could find when I first started searching for answers to CADASIL. Be sure to check it out.

I formed this Yahoo support group in August, 1999, when I was looking for others to talk to who had this same disease that I have. May God bless all of you. Dorene Natte, Group Owner.

Group Information

  • 288
  • Support
  • Aug 25, 1999
  • English

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