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Group Description

Congenital Diaphragmatic Hernia (CDH)
Every Breath They Take Is Our Breath of Hope

Healing is impossible in loneliness. - Wendall Berry

Public Charity 501(c)(3) Effective date: May 17, 2004
CONGENITAL DIAPHRAGMATIC AWARENESS DAY® - ANNOUNCED!
http://www.breathofhopeinc.com/

We can't change the cards we're dealt, just how to play the hand. --Randy Pausch

MISSION STATEMENT:
Breath of Hope exists to raise awareness of congenital diaphragmatic hernia by working with parents, family members, and medical professionals to educate and support all who are affected by or want to learn more about CDH.

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We carry out this mission through promoting public awareness, supporting the medical community and encouraging research efforts to one day successfully treat all those diagnosed with a congenital diaphragmatic hernia.

What Difference has it made?
Breath of Hope's Awareness Campaign and other programs have increased awareness, funding and participation for research which will one day be instrumental in successful treatments for CDH.

Breath of Hope provides the latest information on the treatment and care of the congenital diaphragmatic hernia birth defect. Breath of Hope provides emotional support to parents who are expecting a baby with the congenital diaphragmatic hernia birth defect and will provide emotional support to the parents of surviving and non-surviving children. Breath of Hope currently provides an online email listserv through Yahoo! Groups. This open forum of parents and relatives provides an environment where parents no longer feel alone and where they meet other families that have survived the trials and tribulations of the congenital diaphragmatic hernia birth defect.

PLEASE NOTE: MEMBERSHIP FORM MUST BE COMPLETED BEFORE APPROVAL ON THIS LISTSERV - THANK YOU!

Group Information

  • 271
  • Children's
  • Jan 6, 2004
  • English

Group Settings

  • This is a restricted group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages from new members require approval.
  • All members can post messages.

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