Fwd: meningiomas have some relation to other skin diseases like sarcoidosis and NF2
- hello again, my good friends,
now after the bone marrow biopsy they are telling my younger sister she has a "rare type" of lymphoma. ( i am suspicious of doctors who use the word "rare", just say a specific lymphoma is the common denominator of many other cancer related symptoms in the lymph system ( i always hear about the risk of breast cancer spreading to the lymph nodes? it is all relative, they think she has had the mass in her sternum for ten years, and since it is a slow growing type she probably has another ten years, but how depressing, ?I hope she gets a referral to a specialist in lymphoma?
i wish she would go to brigham and womens in boston, but it is an all day trip?
Sen Arlen Specter, a long time meningioma survivor has some kind of lymphoma too, it has crossed the mind of one other local general surgeon friend of mine a few years ago, after he removed a suddenly irritating sore?lump deep in my upper arm muscle that i might have lymphoma too...
they said my sister has CVID (common variant immune deficiency) could that be related to MS? and or?fybromiligia sp? by any chance?? The blood test is called IGG testing IGA and IGM?? Dr Spark Vance seemed interested in the possiblities of immune deficiencies and other?issues of infection as potential weaknesses we may inherit or be exposed to during our lifetime..
I prefer to think the family genes in me and my siblings contain something that helps us resist the more aggressive faster growing forms of?cancer in the lymph system, blood system and bones.??
Are there any doctors/nurses who might know more or where to look on google for any other related articles in the online house night??
GBYAY Anne Breen
PS Why doesn't the date I sent this below appear like on some others I read?
To: Meningioma@...; email@example.com; meningioma@...; mary.lander@...; meningiaware@...; MeningiomaUK@...; BrainSurgery@yahoogroups.com; firstname.lastname@example.org; kathy1024k@...; Mngioma634@...; Menrhelpless@...; brain-activist@yahoogroups; p.mcginnis@...
Sent: Sun, 27 Jan 2008 8:00 am
Subject: meningiomas have some relation to other skin diseases like sarcoidosis and NF2
This seems like a good general overview of meningioma knowledge?approved by an expert neurosurgen, Dr Peter Black from Boston and sent to me by a dear meningimate Karen C, and i will be checking it again in March 2008.? It includes interesting genetic tendency notes for my family to think about, because my younger sister, 50 is being potentially diagnosed with sarcoidosis for an undetermined large mass in her sternum bone, gall stones and kidney stones run in my family, and another dear longterm meningimate had bony overgrowth in her jawbone which may or may not have been related. I?didn't know about the bony skull regrowth part of my meningioma at all, until 10 years post initial surgical treatment.??
GBYAY Anne Breen
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