Repetitive Living-Conditions in Long-term
- Attention: Alex SchadenbergThis morning an event occurred when I was getting up at 5:00 a.m. It started getting close to what happened in 2005, the day a PA took a swing at me.The PA worked evening and night-shift, and I don't care if he did. He probably got more sleep than I did.--One current room-mate is really sick, and I'm awake alot, in case he needs a nurse. Last night I watched the Grey-Cup game, and went to bed at 11 p.m..Instead of turning-on the lights PA's normally turn-on, he decided to turn-on the brightest lights, because I couldn't reach the light he ordered me to turn-on (I was using the urinal at the time). PA's normally turn-on the lights, without issuing orders.Since starting to write this, I explained everything to the Asst. Head-Nurse and had lunch.--But below is an old letter I wrote a local Bioethics listserve member in 2004, when living-conditions here were the worst. I just discovered this older letter after breakfast, when I was going through everything in my documents folder.Is it alright to ask, if you could forward this old letter to the MP's and doctors who are trying to create policies and laws, to improve conditions in these government and private institutions? On my one blogger-bot blog I've got other posts from other events, and was why I entitled the blog, "Civilized Progressive Society. I hope that if the health-care policy-makers read some of those previous posts, it will help to change the mentality of the Dept. of Nursing.Anyone who reads the below letter will probably agree that, with the Royal Society of Canada insisting that Baby-Boomers are the ones wanting legalized-killings, what fuels the demand is the rotten attitude of half the so-called "care-givers". They sort of divide the new long-termers into:
___________________________________________________________________6/22/2004 3:27 pm
- who fits their favoritism and friends' list
- the bell rings: "what do you want?"--"stop ringing the bell!" list and
- the disposable list.
A disabled lady I've seen around this part of town, but never got to know until three years ago, when my political contact, Heward Grafftey, asked me to visit her together. Two years ago, I finally visited her with Heward, while she still had an apartment a block away. It is an entire apartment block renovated for Disabled People, on Prince Arthur Street.
Last year, Heward contacted me one day, explaining how serious her medical condition was, and that she had to close her apartment, and move into the longterm care facility at Sherbrooke and Jeanne-Mance. He explained that due to a spinal birth defect, doctors were puzzled as to how they could treat her. He didn't feel she would live long, due to complications with top vertebrae pushing into her brain, and causing critical pain. So, she was heavily managed with pain-killers.
One time following one of Heward's visits, he phoned me, and was very upset and emotional. He said that during Sandra's mealtime, the worker taking care of Sandra was very rough with her, and short-tempered. Heward explained how he tried to talk to the worker about how she treated Sandra, and the worker blasted Heward. So, apparently he stood up and told her off.
Remembering that day, which was probably over a year ago now, two months ago I called Heward, and asked if he wanted to go up there to meet her with me. I explained to him some of the nonstop conditions which prevail here, and said I'd like to see for myself how she is, and if they are treating her OK, or if there are problems.
He jumped at the idea, and said he hadn't had a chance to see her for a long time now. So, over the weekend we agreed to go up yesterday. Heward was pretty impressed how much better she looked, and I sensed that she wasn't needing as much pain management. Although Sandra can't speak alot, because she had suffered a stroke after the first time I met her when she had her apartment, she seemed pretty contented, and was watching television.
During our approximate twenty minute visit, we asked how she was feeling, and her and Heward were able to joke around a bit. One thing I was curious to know, was how they were treating her, to which she responded pretty favorably. The one sad thing we learned, however, is that Sandra, who is totally bed-ridden, has no visitors. The only visitors she has is her father, and also Heward, who due to his aging and recovery from heart surgery a year ago, can't visit her as often.
Unlike myself, who didn't grow up here in Quebec, Sandra Cole is fluently bilingual, and studied and worked in both Quebec City and Montreal. Because of this, she must know people around Montreal other than her father. So, I'm curios to know if somehow you can mention her name to other Disabled People, and see if people who used to know her could surprise her with a visit once in awhile, or even regularly. She has a degree in Psychology, and I think she used to have some involvement in disability rights organizations, including DAWN.
Her name is Sandra Cole, and although I can visit her occasionally with Heward, I'm pretty limited with how close our friendship can be. I explained to her about Nancy and me, and that I was going to contact you about my June 29th meeting, in the hopes of having a lawyer who specialises in Disiability Rights issues. She gave it a thumbs-up, and I feel it's important to have a lawyer who will address issues for all longterm care facilities and hospitals, in relation to workers' attitudes with longterm patients.
As the Genocide Warlords' influence and mental conditioning has increased with the high profile attention given to the Schindlers' case last year in Florida, alot of respiratory patients in this hospital are rolling into the palliative-care rooms to self-destruct early. The death toll here has escalated in the past two years, and there isn't much you can do to resist it, when people make their choices after being well-informed about their options. I'm not saying that there is a drive in this hospital to kill people early, but rather, alot more patients in the past two-three years who come to acute-care seem to want the option. Memorial services have longer lists than in previous years. However, there are many longterm patients here who do live here; a few have been here for many years and are not requesting early termination.
This is why I think it is imperative to demand quality of life for longterm patients, and that is impossible unless there is a better quality attitude of workers. For people like Nancy and me who aren't totally bed-ridden, workers and administration adhere to the policy that, because of the healthcare and job-cuts in the past several years, patients are only going to get help to do things they can't do, even if it squeezes the last breath out of them. They made a so-called care-plan for Nancy (bully plan), that when Nancy is really sick and can't do things, she will get help like the totallly bed-ridden patients.
Nancy cries so often, and feels like they are really just trying to kill her off, which is very well supported by workers' behaviour any time she is well enough to go out with me somewhere. They expect her to do everything she used to do when she was able to breathe better. Before another patient died a year ago, she told me that workers would stand there and make her change her own diapers. This is the rotten shit which goes on to people who should be getting help to do things, which is why we closed our apartments down to move into longterm. Head-nurses argue that this isn't their policies, but that patients need to learn to be autonomous.
This is why I need a lawyer who is going to work with me to change this mentality, that when patients are so finished-off that they can't even get out of bed before workers will help do things, then they will get help. Head-nurses insisted that that isn't what happens to Nancy, and that the poor workers feel like they are being abused if they help patients like Nancy or me, when we are able to go places and do things. Oh, the poor workers work so hard, and they feel like Nancy is laughing at them or making fools out of them, and treating them like slaves when she doesn't do what she can for herself. I've had all these accusations.
Nancy used to have a tendency to expect workers to do everything just because they were getting paid, but I've gone over alot of those attitude disorders with her, as well as nurses and social-workers. But I've experienced alot of changes in Nancy in those areas, and I've rammed it down head nurses' throats how Nancy has done alot better job changing her attitude than the workers have--the pooooooooooor abused workers!
Administrators keep resorting to legal challenges against me, and eviction, but I don't think I'm going to take that shit without hauling it through the courts. I believe in people being autonomous, but not to the extent that they can't live their lives because doing the basics like washing up, making their beds, putting clothes away, getting their clothes on, etc., leaves them totally wasted.
What I want is to create social polices, by which healthcare administrators, social-assisstance and home-care services will be bound by law to enforce a user-friendly system. No longer will government and healthcare be allowed to reduce Disabled People and patients to medical objects. Autonomitis has stunk itself to death. The healthcare minister needs to change the whole mentality of healthcare and social-services! Either workers and administrators shift to a quality of behaviour social policy, or get rid of them for a new breed. That's what I'm pushing for, and if people are willing to work with me on this, I expect that heward Grafftey will help promote it to his contacts in Ottowa and Quebec City.
mobile phone: 514-585-6265