Re: New to the group. Please provide some information
- --- In Autism-Mercury@y..., alizaratterree@y... wrote:
> We have a three year old daughter who has been diagnosed PDD-NOS.We
> were finally able to see a developmental specialist who ordered aor
> number of lab tests, to the exclusion of mercury. We will be
> persistent and will have her tested whether it is with this doctor
> another.Find anyone, including a chiropractor, optometrist, or whatever who
will sign for a Hair Element Profile from Doctor's Data. This is a
$42 test that is very helpful and you can interpret yourself using the
information in the "counting rules" file.
> I need to know from those who have gone through this how manyOut of over 100 tests people on this list have been kind enough to
> children have actually tested positive?
post or share privately, 1 or maybe 2 appear to have some basis for
their problem other than heavy metal intoxication. This is also what
the physicians who practice in this area see - very few of the
"genetic defect" cases, most cases respond to treatments that "aren't
supposed to work" and "are a waste of your money" according to their
>How has chellation therapy gone?Marvelously.
> Has anybody seen improvements in their children?Go through the "love letters" file and the multitudinous progress
reports on this list.
> My daughterThere are none, since PDD/NOS and autism ARE heavy metal intoxication.
> is nonverbal, but seems very open to learning sign language. She
> makes almost no attempt to verbally communicate, but seems to
> understand almost everything I tell her.
> What are the classic symptoms of mercury poisoning that would
> distinguish themselves from the regular PDD-NOS/Austism spectrum
> disorder characteristics?
It isn't a distinct clinical entity, it is simply a misdiagnosis.
Very few kids who have these diagnoses are NOT heavy metal toxic.
> Please post your experiences. I know it may be redundant, but I
> the help and expertise of you parents.
- <<Andy said: >>
>Find anyone, including a chiropractor, optometrist, or whatever whoIf you don't find someone to sign for the test, you can have DLS
>will sign for a Hair Element Profile from Doctor's Data. This is a
>$42 test that is very helpful and you can interpret yourself using the
>information in the "counting rules" file.
sign for it for you--- which costs -- um-- I think it is $79.
(search in the archive on "DLS"-- i post this info regularly--
Ask if you don't find it & I'll post it again.)
- Hi Tracy,
Point taken, and thanks; we always use the term ASD especially in
reference to a child like Aliza's who, from the little we know,
probably isn't "classically" autistic because her receptive language
Nevertheless, I think that for administrative reasons she should
avoid the PDD-NOS diagnosis and get a written diagnosis of autism
precisely BECAUSE they are different. In the State of California (and
we don't know where Aliza lives, everything may be better there, or
it could be worse) there are eight qualifying diagnoses to become a
client of Regional Center; autism is one, and "any condition that
causes a person to function in the retarded range" is the
last "catchall" diagnosis at the end of the list. Again because
Aliza's daughter doesn't sound retarded (I admit I'm skating on very
little info here) she won't land in the eighth category, so in order
to get services she may need a diagnosis of autism. Of course with
even a whiff of common sense, these agencies who are supposed to
serve and support children with developmental disabilities would
never stoop to quibble over this, but there have literally been
lawsuits around here recently to try to achieve that level of common
sense. Especially since her child is three and already past Early
Start age, the purse strings do get tighter, and any the more
straightforward Aliza can make it for them to help her daughter, the
better served her daughter will be, remains my advice.
BTW That is so cool about your son and the blocks. No joke, it sounds
like the genesis of a very employable skill!
--- In Autism-Mercury@y..., "Tracy Steinbach" <tsteinbach4@h...>
> Hi, Cathy!is a term that has developed in common language used by parents in
> I hate to disagree with you, but ASD is not a DSMIV diagnosis. ASD
discussing their children. People use it because Autism is a well
known term, but PDD is not. However, it is getting to be with the
rise is the number of children with these diagnoses.
>Disorders (p.65, check it out!). Autism is a different diagnosis than
> PDD-NOS is a DSMIV diagnosis under the Pervasive Developmental
PDD-NOS. Although Aliza's daughter has received the PDD-NOS
diagnosis, when she is older they may change her diagnosis to
Autism. Because of her age, or because of her presenting overall
picture, the doctor may have reasonably felt that PDD-NOS was the
correct diagnosis. More to the point, has she been diagnosed
additionally with Mental Retardation. My daughter is PDD-NOS with
Mental Retardation, and my son is also PDD-NOS with average
intelligence. Incidentally, when my son was being tested initially
at the Yale Child Study Center I was told that he had scored the
highest score of any child that had ever been tested at Yale in the
block design test (99th percentile!). Cool! He'll be a world-class
architect one day (he hopes)!
>vary depending upon the district, the teachers, etc. That's why it
> School districts know the range, but the quality of programs may
is so important that parents know their children's educational rights
and advocate strongly for their child. No one knows their child
better than the parent, but I know both of my kids cooperate a whole
lot better with other people than me. With me there are always the
parent-child issues (yeah, just keep pushing my buttons to see when
I'll put my foot down!).
> ----- Original Message -----
> From: catharineb2001@y...
> To: Autism-Mercury@y...
> Sent: Sunday, October 28, 2001 4:15 PM
> Subject: [Autism-Mercury] Re: New to the group. Please provide
> Dear Aliza,
> Hello and welcome to this group. Most of the info you are seeking
> be perused at your liesure in the "Files" section. In particular,now
> please read the FAQ for info about diagnostic testing, and
> the "Love_Letters" file for many families' accounts of their
> children's response chelation. My son with autism is four, has
> had seven rounds of DMSA-only chelation, and has made veryexciting
> progress.those of
> The symptoms of autism/PDD-NOS in fact very closely parallel
> mercury poisoning.say
> is a long scientific paper that explores this subject in detail.
> If you'll indulge me in a suggestion that is not what you asked
> about, go back to your doctor and ask for a written diagnosis of
> autism spectrum disorder (ASD) for your daughter, not PDD-NOS. I
> this because sometimes Regional Centers (the state agency thatshould
> be helping you with obtaining services for her) and schooldistricts
> will quibble about whether PDD-NOS is really a "qualifyingdiagnosis"
> whereas autism always is. Your doctor probably said PDD-NOSbecause
> your daughter is smart (based on her good receptive languageto
> ability); or as a way to sugar the pill and spare you from having
> hear the dreaded A-word. Think of the word "autism" not as adeath
> sentence or even a reliable predictor of her future, but as ameal
> ticket that will help you get her the services she needs.that
> You're in the right "place" and your daughter is young enough
> tremendous things are possible for her. If you will post whereyou
> live, you will probably find other parents nearby who can helpyou
> with local resources.Lynn
> PS One more unsolicited suggestion... the book Facing Autism by
> Hamilton does not address chelation, but except for that I thinkit's
> the best all-around book for parents of new diagnosees. IRight
> particularly recommend her chapter about "Ten Things You Can Do
> Now" -- for example signing her up ASAP on waiting lists all overwaits,
> town, since all the good service agencies invariably have long
> and videotaping her for future comparison purposes.NOS.
> --- In Autism-Mercury@y..., alizaratterree@y... wrote:
> > We have a three year old daughter who has been diagnosed PDD-
> > were finally able to see a developmental specialist who ordered
> > number of lab tests, to the exclusion of mercury. We will bedoctor
> > persistent and will have her tested whether it is with this
> > another.
> > I need to know from those who have gone through this how many
> > children have actually tested positive? How has chellation
> > gone? Has anybody seen improvements in their children? MyShe
> > is nonverbal, but seems very open to learning sign language.
> > makes almost no attempt to verbally communicate, but seems tospectrum
> > understand almost everything I tell her.
> > What are the classic symptoms of mercury poisoning that would
> > distinguish themselves from the regular PDD-NOS/Austism
> > disorder characteristics?I
> > Please post your experiences. I know it may be redundant, but
> > the help and expertise of you parents.
> > Thank you,
> > Aliza
> Statements posted on this list are for information only,
> and should NOT be taken as medical advice. If you need
> medical advice, you should seek it from those who are
> authorized to give medical advice: doctors.
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