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Re: New to the group. Please provide some information

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  • AndyCutler@aol.com
    ... We ... or ... Find anyone, including a chiropractor, optometrist, or whatever who will sign for a Hair Element Profile from Doctor s Data. This is a $42
    Message 1 of 7 , Oct 28, 2001
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      --- In Autism-Mercury@y..., alizaratterree@y... wrote:
      > We have a three year old daughter who has been diagnosed PDD-NOS.
      We
      > were finally able to see a developmental specialist who ordered a
      > number of lab tests, to the exclusion of mercury. We will be
      > persistent and will have her tested whether it is with this doctor
      or
      > another.

      Find anyone, including a chiropractor, optometrist, or whatever who
      will sign for a Hair Element Profile from Doctor's Data. This is a
      $42 test that is very helpful and you can interpret yourself using the
      information in the "counting rules" file.

      > I need to know from those who have gone through this how many
      > children have actually tested positive?

      Out of over 100 tests people on this list have been kind enough to
      post or share privately, 1 or maybe 2 appear to have some basis for
      their problem other than heavy metal intoxication. This is also what
      the physicians who practice in this area see - very few of the
      "genetic defect" cases, most cases respond to treatments that "aren't
      supposed to work" and "are a waste of your money" according to their
      mainstream colleagues.

      >How has chellation therapy gone?

      Marvelously.

      > Has anybody seen improvements in their children?

      Go through the "love letters" file and the multitudinous progress
      reports on this list.

      > My daughter
      > is nonverbal, but seems very open to learning sign language. She
      > makes almost no attempt to verbally communicate, but seems to
      > understand almost everything I tell her.
      >
      > What are the classic symptoms of mercury poisoning that would
      > distinguish themselves from the regular PDD-NOS/Austism spectrum
      > disorder characteristics?

      There are none, since PDD/NOS and autism ARE heavy metal intoxication.
      It isn't a distinct clinical entity, it is simply a misdiagnosis.
      Very few kids who have these diagnoses are NOT heavy metal toxic.
      >
      > Please post your experiences. I know it may be redundant, but I
      need
      > the help and expertise of you parents.
      >
      > Tha
    • Moria Merriweather
      ... If you don t find someone to sign for the test, you can have DLS sign for it for you--- which costs -- um-- I think it is $79. (search in
      Message 2 of 7 , Oct 29, 2001
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        <<Andy said: >>
        >Find anyone, including a chiropractor, optometrist, or whatever who
        >will sign for a Hair Element Profile from Doctor's Data. This is a
        >$42 test that is very helpful and you can interpret yourself using the
        >information in the "counting rules" file.

        If you don't find someone to sign for the test, you can have DLS
        sign for it for you--- which costs -- um-- I think it is $79.
        (search in the archive on "DLS"-- i post this info regularly--
        Ask if you don't find it & I'll post it again.)
      • catharineb2001@yahoo.com
        Hi Tracy, Point taken, and thanks; we always use the term ASD especially in reference to a child like Aliza s who, from the little we know, probably isn t
        Message 3 of 7 , Oct 29, 2001
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          Hi Tracy,

          Point taken, and thanks; we always use the term ASD especially in
          reference to a child like Aliza's who, from the little we know,
          probably isn't "classically" autistic because her receptive language
          is good.

          Nevertheless, I think that for administrative reasons she should
          avoid the PDD-NOS diagnosis and get a written diagnosis of autism
          precisely BECAUSE they are different. In the State of California (and
          we don't know where Aliza lives, everything may be better there, or
          it could be worse) there are eight qualifying diagnoses to become a
          client of Regional Center; autism is one, and "any condition that
          causes a person to function in the retarded range" is the
          last "catchall" diagnosis at the end of the list. Again because
          Aliza's daughter doesn't sound retarded (I admit I'm skating on very
          little info here) she won't land in the eighth category, so in order
          to get services she may need a diagnosis of autism. Of course with
          even a whiff of common sense, these agencies who are supposed to
          serve and support children with developmental disabilities would
          never stoop to quibble over this, but there have literally been
          lawsuits around here recently to try to achieve that level of common
          sense. Especially since her child is three and already past Early
          Start age, the purse strings do get tighter, and any the more
          straightforward Aliza can make it for them to help her daughter, the
          better served her daughter will be, remains my advice.

          BTW That is so cool about your son and the blocks. No joke, it sounds
          like the genesis of a very employable skill!

          Cathy

          --- In Autism-Mercury@y..., "Tracy Steinbach" <tsteinbach4@h...>
          wrote:
          > Hi, Cathy!
          >
          > I hate to disagree with you, but ASD is not a DSMIV diagnosis. ASD
          is a term that has developed in common language used by parents in
          discussing their children. People use it because Autism is a well
          known term, but PDD is not. However, it is getting to be with the
          rise is the number of children with these diagnoses.
          >
          > PDD-NOS is a DSMIV diagnosis under the Pervasive Developmental
          Disorders (p.65, check it out!). Autism is a different diagnosis than
          PDD-NOS. Although Aliza's daughter has received the PDD-NOS
          diagnosis, when she is older they may change her diagnosis to
          Autism. Because of her age, or because of her presenting overall
          picture, the doctor may have reasonably felt that PDD-NOS was the
          correct diagnosis. More to the point, has she been diagnosed
          additionally with Mental Retardation. My daughter is PDD-NOS with
          Mental Retardation, and my son is also PDD-NOS with average
          intelligence. Incidentally, when my son was being tested initially
          at the Yale Child Study Center I was told that he had scored the
          highest score of any child that had ever been tested at Yale in the
          block design test (99th percentile!). Cool! He'll be a world-class
          architect one day (he hopes)!
          >
          > School districts know the range, but the quality of programs may
          vary depending upon the district, the teachers, etc. That's why it
          is so important that parents know their children's educational rights
          and advocate strongly for their child. No one knows their child
          better than the parent, but I know both of my kids cooperate a whole
          lot better with other people than me. With me there are always the
          parent-child issues (yeah, just keep pushing my buttons to see when
          I'll put my foot down!).
          >
          > Cheers!
          >
          > Tracy
          > ----- Original Message -----
          > From: catharineb2001@y...
          > To: Autism-Mercury@y...
          > Sent: Sunday, October 28, 2001 4:15 PM
          > Subject: [Autism-Mercury] Re: New to the group. Please provide
          some information
          >
          >
          > Dear Aliza,
          >
          > Hello and welcome to this group. Most of the info you are seeking
          can
          > be perused at your liesure in the "Files" section. In particular,
          > please read the FAQ for info about diagnostic testing, and
          > the "Love_Letters" file for many families' accounts of their
          > children's response chelation. My son with autism is four, has
          now
          > had seven rounds of DMSA-only chelation, and has made very
          exciting
          > progress.
          >
          > The symptoms of autism/PDD-NOS in fact very closely parallel
          those of
          > mercury poisoning.
          >
          > http://www.autism.com/ari/mercurylong.html
          >
          > is a long scientific paper that explores this subject in detail.
          >
          > If you'll indulge me in a suggestion that is not what you asked
          > about, go back to your doctor and ask for a written diagnosis of
          > autism spectrum disorder (ASD) for your daughter, not PDD-NOS. I
          say
          > this because sometimes Regional Centers (the state agency that
          should
          > be helping you with obtaining services for her) and school
          districts
          > will quibble about whether PDD-NOS is really a "qualifying
          diagnosis"
          > whereas autism always is. Your doctor probably said PDD-NOS
          because
          > your daughter is smart (based on her good receptive language
          > ability); or as a way to sugar the pill and spare you from having
          to
          > hear the dreaded A-word. Think of the word "autism" not as a
          death
          > sentence or even a reliable predictor of her future, but as a
          meal
          > ticket that will help you get her the services she needs.
          >
          > You're in the right "place" and your daughter is young enough
          that
          > tremendous things are possible for her. If you will post where
          you
          > live, you will probably find other parents nearby who can help
          you
          > with local resources.
          >
          > Cathy
          >
          > PS One more unsolicited suggestion... the book Facing Autism by
          Lynn
          > Hamilton does not address chelation, but except for that I think
          it's
          > the best all-around book for parents of new diagnosees. I
          > particularly recommend her chapter about "Ten Things You Can Do
          Right
          > Now" -- for example signing her up ASAP on waiting lists all over
          > town, since all the good service agencies invariably have long
          waits,
          > and videotaping her for future comparison purposes.
          >
          > --- In Autism-Mercury@y..., alizaratterree@y... wrote:
          > > We have a three year old daughter who has been diagnosed PDD-
          NOS.
          > We
          > > were finally able to see a developmental specialist who ordered
          a
          > > number of lab tests, to the exclusion of mercury. We will be
          > > persistent and will have her tested whether it is with this
          doctor
          > or
          > > another.
          > >
          > > I need to know from those who have gone through this how many
          > > children have actually tested positive? How has chellation
          therapy
          > > gone? Has anybody seen improvements in their children? My
          > daughter
          > > is nonverbal, but seems very open to learning sign language.
          She
          > > makes almost no attempt to verbally communicate, but seems to
          > > understand almost everything I tell her.
          > >
          > > What are the classic symptoms of mercury poisoning that would
          > > distinguish themselves from the regular PDD-NOS/Austism
          spectrum
          > > disorder characteristics?
          > >
          > > Please post your experiences. I know it may be redundant, but
          I
          > need
          > > the help and expertise of you parents.
          > >
          > > Thank you,
          > > Aliza
          >
          >
          > =======================================================
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