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  • Welcome to the Jaw Distraction/Craniofacial Surgery Discussion Group! This group is for all whose lives have been affected by a craniofacial difference or anyone who has an...
    437 members Last activity Apr 18
  • CCA is the premier national organization addressing the medical, financial, emotional, psychosocial and educational issues related to craniofacial conditions. Our mission: empowering and giving hope to individuals and...
    642 members Last activity Apr 17
  • Welcome to the Crouzon Support Network, an online support forum for individuals and families facing the challenges related to living with Crouzon Syndrome and other craniofacial...
    217 members Last activity Apr 17
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  • Pierre Robin Network is comprised of parents, caregivers, family members, medical professionals and adults with PRS. The purpose of our group is to share...
    730 members Last activity Apr 17
  • For parents of children born with cleft lip and/or cleft palate. Our list is open to all to freely express their feelings, get support and to learn in a positive environment. We have a great group of parents on our list who are...
    674 members Last activity Apr 6
  • CleftClub.com is for providing information and support for those dealing with cleft lip and/or palate, whether you were born with it, are parents of a cleft child, or are a relative or friend of someone who was. We discuss everything from the pregnancy to...
    560 members Last activity Mar 28
  • I wanted to begin a message site for children. My son has microtia, a deformity of the ear, and I have had a hard time finding chat groups for children with facial deformities. Please post any questions or...
    143 members Last activity Jan 18
  • I am the mother of a child with Muenke syndrome, and have had difficulty finding other families who are dealing with this as well. I am hoping by putting this group up I can meet other people out there. Looking...
    38 members Last activity Nov 27, 2013
  • This club is I guess, intended for but not limited to teens with a cleft palate and/or lip. Anyone is welcomed to join and talk about anything... I am 16, with a cleft lip and palate, and I wanted to start a club for cleft...
    80 members Last activity Sep 3, 2013
  • This group is for the Association of children with facial abnormalities and their parents – ALA. A group for families and individuals dealing with issues surrounding cleft lip...
    10 members Last activity Nov 7, 2010