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/Muscular Dystrophy

    Groups List

  • Welcome to the OPMD (Oculopharyngeal Muscular Dystrophy) Support Group. We welcome those affected with OPMD and their family and friends. Our OPMD members offer...
    352 members Last activity Jan 28
  • International web-based SUPPORT/ADVOCACY GROUP exclusively for patients diagnosed with Myotonic Dystrophy type 2 (DM2) or PROMM. Access an online patient resource base to become...
    204 members Last activity 8:00 PM
  • A place for those affected with CCD to come and share your experiences. A place for those affected with CCD to find support. A place for those with loved ones affected with CCD to come and learn more. A...
    146 members Last activity Dec 30, 2015
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  • The DMDSupport List is an email list for parents, families, individuals facing the challenge of Duchenne Muscular Dystrophy (DMD).
    377 members Last activity Jan 28
  • Support and discussion of Muscular Dystrophy. Please come join in the discussion! You might feel more comfortable joining and "sitting back and watching" for a few days, just to see how the list runs. But feel free to jump in any...
    485 members Last activity Dec 22, 2015
  • Welcome to DMD Pioneers Mailing List! DMD Pioneers is an international group for anyone with Duchenne Muscular Dystrophy (DMD) who has beaten the odds. We...
    240 members Last activity Feb 7
  • Dysferlin deficiency causes two forms of muscular dystrophy: Miyoshi distal myopathy and Limb-Girdle Muscular dystrophy type 2B. The dysferlin gene and protein were discovered in 1998; many research groups around...
    201 members Last activity Nov 29, 2014
  • Welcome to MDA All The Way, where anyone affected by a neuromuscular disease can meet old friends and make new friends.
    164 members Last activity Mar 24, 2014
  • This is a list for parents with children that have a Congenital Muscular Dystrophy (not Myotonic). The child was born (congenital) with a muscle disease that does not fit any of the other Muscular...
    184 members Last activity Jul 2, 2015
  • I am a 44-Year-Old Gentleman with Duchenne Muscular Dystrophy and a Born-Again, Spirit-Filled Christian. This Group is to be a place of safety for...
    127 members Last activity Nov 21, 2014