[OUR MISSION]CCAC is an international community of lay people and veterinarians interested in hyperadrenocorticism, canine Cushing's syndrome, steroid hormone aberrations and associated disorders (e.g. liver disease, pancreatitis, diabetes, IBD, kidney disease, UTI, bladder stones, incontinence, heart disease, hypertension, thromboembolism, hypothyroidism, myotonia, arthritis, osteoporosis, c… [more]
Topics frequently discussed: aberration, addison disease, addison s, addison s disease, addison s disease in dogs, addisonian crisis, adrenal cancer, adrenal crisis, adrenal crisis, adrenal health, adrenal hyperplasia, adrenal tumor, adrenal tumors, alopecia treatment, animal genetic resources, arthritis in dogs, associate in risk management, associated risk factors, autoimmune disease, autoimmune diseases, bladder cancer, bladder cancer alternative treatment, bladder cancer treatment, bladder disease, bladder incontinence, bladder stone, bladder stones, bladder stones in dogs, bladder tumor, bladder tumors, calcinosis, calcinosis cutis, cancer in cats, cancer in dogs, cancer of the bladder, canine addison s disease, canine arthritis, canine cancer, canine cushing disease, canine cushing s, canine cushing s disease, canine cushings disease, canine diabetes, canine diseases, canine heart, canine kidney disease, canine liver disease, canine medicine, canine pancreatitis, canine seizures
This is a support group for women who have Late Onset Congenital Adrenal Hyperplasia.[more]
Topics frequently discussed: adrenal hyperplasia, congenital adrenal hyperplasia
The Cushings-Friends group (for a while called Cushings-Research) was established as a place for people with the various forms of high-cortisol related illness to discuss relevant issues, and to find friendly support and useful information about the several illnesses generally within the "Cushing's syndrome" umbrella. Those interested in Cushing's on behalf of others - includin… [more]
Topics frequently discussed: acth, adrenal hyperplasia, carcinoid, carcinoid syndrome, cortisol, cortisol, course of nature, cushing, cushing disease, cushing s, cushing s disease, cushing s syndrome, cushing s syndrome, cushing syndrome, cushings, cushings disease, cushings disease, cushings syndrome, nature s variety, natures variety, pituitary
Welcome: This Congenital Adrenal Hyperplasia list is for parents/caregivers only of children with CAH, Salt-Wasters and Non Classical (Late Onset) CAH. Discussions will include the sharing of ideas, concerns, experiences, and information that is related to CAH. This list is not a substitute for your physician and we ask that any medical information discussed over this list should be communicated w… [more]
Topics frequently discussed: adrenal hyperplasia, cah, congenital adrenal hyperplasia, hyperplasia, magic salt, salt substitute, salt substitutes
This list is dedicated to the support of family members with Congenital Adrenal Hyperplasia and related disorders. We welcome all questions and discussions relating to this subject. It is rare that we ever get to meet someone else dealing with the same difficulties and we'd like to use this as an opportunity to get to know each other, as well as inform new parents. Please note that this … [more]
Topics frequently discussed: adrenal, adrenal health, adrenal hyperplasia, adrenals, congenital adrenal hyperplasia, hyperplasia, list of questions to get to know someone, note that these, note that this, note that this, note that this page, noted that this, please note that these, please note that this, please note that this, please that this
This group is a discussion forum for women affected by Classical Congenital Adrenal Hyperplasia (CAH). It is intended for affected women ages 18 and older, but age exception is possible where appropriate.[more]
Topics frequently discussed: adrenal hyperplasia, congenital adrenal hyperplasia, hyperplasia
Northern California families affected by Congenital Adrenal Hyperplasia[more]
Topics frequently discussed: adrenal, adrenal health, adrenal hyperplasia, adrenals, congenital, congenital adrenal hyperplasia, hyperplasia
This is a Rare Disease Support Community eGroup available for anyone interested in making friends, sharing information and/or providing support for persons affected by "Congenital Adrenal Hyperplasia." International Rare Disease Support Network Caring for people affected by rare diseases 1437 Cool Springs Dr. Mesquite, Texas USA 75181-4739 Telephone: (972)222-9153 Voice/Fax: … [more]
Topics frequently discussed: 993, adrenal, adrenal health, adrenal hyperplasia, adrenals, congenital adrenal hyperplasia, congenital diseases, cool springs, hyperplasia, international support network, is telephone support available, rare diseases, support people affected, supports people affected, texas health spring
A support group for those with inborn errors of metabolism as well as for their parents, family and friends. Caregivers, professionals and therapists are also welcome. Inborn errors of metabolism comprise a large class of genetic diseases involving disorders of metabolism. The majority are due to defects of single genes that code for enzymes that facilitate conversion of various substances (subs… [more]
Topics frequently discussed: acute intermittent porphyria, adrenal hyperplasia, amino acid, amino acid, amino acids, amino acids, carbohydrate deficiency, carbohydrate metabolism, carbohydrates metabolism, classes of carbohydrates, classes of organic compounds, compound support, congenital adrenal hyperplasia, congenital diseases, conversion disorder, dehydrogenase, effects of acid, effects of single parenting, effects of steroids, error, error, error code, error code that, error codes, error function, errors, essential amino acid, essential amino acid, essential amino acids, essential amino acids, essential fatty acid, essential fatty acids, examples of acid, examples of acids, examples of carbohydrates, examples of compounds, examples of organic compounds, examples of problems, fall into this category, fatty acid, fatty acid deficiency, fatty acid metabolism, fatty acid oxidation disorder, fatty acids, function of carbohydrates, functions of carbohydrates, gaucher disease, gaucher s disease, genetic code, genetic disease
This group is for teenagers with Congenital Adrenal Hyperplasia.[more]
Topics frequently discussed: adrenal hyperplasia, congenital adrenal hyperplasia
Since 1995 adrenal congenital hyperplasia is a household term for my family. With surprise and fear we learned what it was and we are a little bit stronger in the knowledge accumulated. But it is not enough. Share with me your experiences and I will do likewise. Take care. [more]
Topics frequently discussed: accumulate your knowledge, adrenal, adrenal health, adrenal hyperplasia, adrenals, congenital adrenal hyperplasia, hyperplasia
This is a group that gives info, support and news about new findings conserning Congenital Adrenal Hyperplasia. Mothers with kids or other patients are welcome to share their experiance with others.[more]
Topics frequently discussed: adrenal hyperplasia, congenital adrenal hyperplasia, hyperplasia
genomics , endocrinology ( including realtions of diabetes and obesity, conn's / cushing's / addison's / adrenal hyperplasia , inter alia. to cardiovascular dysfunction ) cardiovascular , catecholamine and other interesting ( including " alternative medical " as well as pharmacological [ benefits and costs ] ) treatements of / for cardio -vascular and other vascular ( p… [more]
Topics frequently discussed: addison s, adrenal, adrenal health, adrenal hyperplasia, adrenals, aldosterone, atherosclerosis, atherosclerosis, bradycardia, bradycardia, cardio, cardio, cardio vascular, catecholamine, catecholamines, conn s, cushing s, dyslipidemia, endocrinology, endocrinology, hyperaldosteronism, hyperplasia, hypotension, hypotension, infarction, inter alia, ischemia, ischemia, obesity and atherosclerosis, obesity and diabetes, obesity hypertension, pharmacological, renal system, renin, vascular, vascular system
Congenital Adrenal Hyperplasia with 3 Beta HydroxySteroid Deficiency. For women who have been diagnosed with 3Beta dehydrogenase deficiency. How rare we are. [more]
Topics frequently discussed: adrenal, adrenal health, adrenal hyperplasia, adrenals, congenital adrenal hyperplasia, deficiencies, deficiency, dehydrogenase, hyperplasia
CONGENITAL ADRENAL HYPERPLASIA (CAH) ¶ ÓÕÃÃÅÍÇÓ ÕÐÅÑÐËÁÓÉÁ ÅÐÉÍÅÖÑÉÄÉÙÍ ( ÓÕÅ) ÁõôÞ ç ïìÜäá õðïóôÞñéîçò áðåõèýíåôå óå üóïõò èÝëïõí íá óõæçôÞóïõí ãéá áõôÞí ôçí óðÜíéá áññþóôéá êáé äåí âñßóêïõí êÜðïéïí ãéá íá ìéëÞóïõí. Åßíáé óðÜíéï íá âñåéò êÜðïéïí ðïõ áíôéìåôùðßæåé ôçò ßäéåò äõóêïëßåò êá… [more]
Topics frequently discussed: adrenal hyperplasia, congenital adrenal hyperplasia, hyperplasia
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