Hi Jodi: This reminds me somewhat of my daughter. I don t think she eats likes this but she is a mouth breather for the most part. He is still really young toMessage 1 of 6 , Jul 1, 2010View SourceHi Jodi:This reminds me somewhat of my daughter. I don't think she eats likes this but she is a mouth breather for the most part. He is still really young to and this might play a factor, at least, in the swimming part.My daughter has allergies which prevent her from breathing through her nose. Sometimes it gets so bad she can't use her oxygen. Her stats are usually around 85 or so and this is laying down which I've been will result in higher readings. My daughter can't hold her breath long due to her pulmonary hypertension and probably her asthma.I hope that I was a little help.
Have a blessed day!
Mom to Nicole (15 years old) VSD, ASD, Pulmonary Hypertension, Eisenmenger's Syndrome
Jesus said to him, you do not understand now what I am doing, but you will understand later on. John 13:7
God, I do not understand what I do. For what I want to do I do not do, but what I hate I do. Romans 7:15
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From: email@example.com [mailto:firstname.lastname@example.org]On Behalf Of Jodi Lemacks
Sent: Wednesday, June 30, 2010 9:28 AM
Subject: [mendedlittleheartsmembers] breathing/swallowing question
I have an observation about Joshua, and I wondered if anyone has any thoughts or ideas. For years now, Joshua has chewed his food very loudly with his mouth open. Every meal, we remind him about this at least twice. He will chew for a few minutes with his mouth closed, and then he will start chewing loudly again. It almost seems like he can’t figure out breathing and eating.
Lately, when he goes to the pool, he has tried to swim underwater. For some reason, he does not seem to be able to figure out that he can’t breathe in. He often comes up spluttering. Last pool visit, he took on a bunch of water, and didn’t recover from it for some time (and this is while I was right there with him—it scared me pretty badly).
I am starting to think there is some relationship between these two issue. Is it the lower sats (88 to 92 normally) or some other thing that is causing him to not be able to figure out breathing and eating/swimming? He was intubated for almost 6 weeks after his Norwood with terrible effusions. His lungs never look “normal” on x-ray. (I am told that is from the Fontan physiology causing more fluid in the tissue.)
What do you all think?
Mom to Joshua hlhs 7, Nicholas 12, Jacob 14
Mended Little Hearts, National Program Coordinator
jodi.lemacks@ mendedlittlehear ts.org
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