Hi Jane , when i tried to carry on as normal i was taken to hospital on numerous occations .. i did have SVT any way before i got IST , the svt was intermittent and did not cause me to miss work even though they are scary, some times the SVT would only last minuites but others lasted hours this is when i go to hospitlal ...
but the IST is a chronic type of rhythm diturbance, erratic and it fatigues you all of the time ... i have come to terms with it and accept it as part of my life but not the full life i had, far from it very different now...
i fear having ablation and pacemaker and do not really know whats around my corner ... but as far as the work thing goes, it is down to what you can manage and your circumstances ... i could not manage to carry on anymore because i am unwell and feel unwell all of the time, i accepted this eventually,
but as soon as i did accept it i felt some relief and started to try and adapt to my new circumstances and not keep fighting it ... it is hardest if you think you've got it for life .. i try and not look to far forward and never look back ... i live in the moment the here and now ... a lot of fretting is wasted energy ... having said that i have done my share and still have my moments..
did you know the AA and Stars have produced a information fact sheet on IST , you can download it from the site also my story is on both sites i gave an overview of what my day is like with IST, if you want to read it ...
i am doing better now but only with the lifestyle changes i have had to make ... i hope things begin to improve for you ..
--- In email@example.com, Jane wrote:
> Hi everyone. Thank you for all your continuing support.I just thought I'd let you know my latest news.Having fallen ill again 2 weeks ago, in the end I did contact the arrhythmia team at the hospital. They have brought forward my appt from September to June 14th, which is great.
> I managed to go back to work last week (after a week off). My GP was reluctant to let me go back but in the end he agreed, as long as I saw him again if I felt ill again.
> I lasted just 3 days! My symptoms have come back big time & I am now signed off sick from work until I've seen the arrhythmia team at the hospital.
> At least I tried to go back to work, but I realise now that I am just going to have to accept that I am not well enough to be at work. I am just hoping that the arrhythmia Dr's will be able to get the symptoms under control again somehow. As I said before, the Consultant said that if the Ivabradine does not control my symptoms, he will have to consider doing the sinus node ablation but he is not at all keen. I just can't imagine being so incapacitated for the rest of my life! I am only 47. I've had this arrhythmia for 14 months now & it feels like a lifetime! I know many of you have suffered for years.
> Have any of you had problems trying to continue working with your arrhythmia? Have your employers been understanding/sympathetic? It is a very difficult situation.
> Best wishes