--- In firstname.lastname@example.org
, felicia gallo
> Hi Group,
> I am here to give you an update on my daughter Amanda it has been
several years I haven't written an update on Amanda's progress, here
is her story.
> My journey began on June 19, 1998, when my daughter Amanda was
born. The doctors told me that Amanda had Cerebral Palsy. They said
that she was very severe and had very extensive brain damage. Her
brain scan showed that she had virtually no cortex and the color SPECT
scan showed a devastating loss of the cortex. It also appeared that a
large segment of the brain was missing due to brain edema. Like any
parent I was in shock. I did not know what to do or where to turn.
> As the days and months passed by we noticed she was not doing
anything that she should be doing developmentally for the age of 9
months. Her head and spine arched back and always stayed on the left
side with her head, and her eyes were always rolled up.
> At the age of 9 months Amanda started doing Hyperbaric Oxygen. We
noticed that her spascity was reduced, she was sleeping better, her
nystagma was less and her vision improved. The next brain scan showed
that there was more blood flow to her brain. We did Hyperbaric Oxygen
for 1 year.
> Amanda had turned 2 years old and she was better since the
Hyperbaric Oxygen. She still had her head arched back but it was
less. Her eyes would roll up less and her spasticity was less also.
However, she was still not able to walk, talk, smile, or suck her
bottle or look at us.
> We heard about Embryonic Stem Cell Therapy and I was very excited.
I gave it a lot of thought about whether I should take Amanda or not,
and I decided I would give it a try since I had nothing to loose
because Amanda was already brain damaged enough. I followed my
instinct and my heart.
> We started to do Stem Cell Therapy when Amanda was 2 years old.
Today Amanda is 8 years old and here are the changes we saw in the
last 6 years with doing Embryonic Stem Cells.
> Amanda was not able to suck her bottle at the age of 2 but she now
is able to suck her bottle and her sucking coordination came back.
Her eyes are more alive, alert and expressive. She now turns her head
and eyes to look at me when I call her but before there was no
response. Her hands are now more opened up too. The best thing that
I love now is she is able to give me a huge smile. For me that smile
means one million words! She is a lot more active and pays attention
to what is going on around her and she understands a lot more too.
> Amanda is now learning how to crawl, which is so amazing! She is
able to stand up by herself for a few seconds. She wants to achieve
it so badly that she puts all her energy into trying. We have done
EEG'S and it has shown that her readings are much better. She is able
to express herself with a sad face and she babbles more. I noticed
she understand a lot more now they are periods that she does not eat
breakfast and when I tell her if you eat daddy will play with you,
within 10 minutes she is done her breakfast. At night she will call
me and let me know she wants to drink, and goes back to sleep after
her drinking this is a big step for her to call me, she is
understanding more and more. Her brain scan showed an increase in the
size of the cortex too. And now the best for last she mumbles "MAMA"
which is the best gift she could give me. We have gone for more stem
cells and Amanda is improving a lot on her babbling more new sounds
are coming out, she could go on
> for hours now and babble this is new for us. My husband also
noticed when we ignore her now she will just look and say out loud
HEY, she also is learning how to sit on her own when doing therapy,
the therapist holds only her hands and the rest Amanda tries to
balance herself, I thank god everyday for giving her a chance to doing
Embryonic Stem Cells it has changed my life amazing and full of
happiness in my heart.
> That explains why she is my Angel, sent from heaven.
> If you would like to see Amanda's video of her trying to sit on
her own with her therapist I will email.
> If I can help anyone please let me know. thank you.
> Felicia Gallo
> All new Yahoo! Mail -
> Get a sneak peak at messages with a handy reading pane.
> [Non-text portions of this message have been removed]
This is Lucy here all the way from Malaysia. I was really touched to
hear your story. I have a daughter too who was diagnosed as a CP at
aged 1. She is now 5 yrs and is still not able to stand and walk yet.
We have PT & OT sessions at the Hospital every week but I can't
afford to go out every week because I am working(in a private firm)
and it would be very inconvenient to go out every week. I was thinking
of leaving my job but then again it would definitely cause financial
strains at home if I stop working. My daughter Marvel can sit (wobbly
though) without support for about 15 minutes.
I agree with you Felicia that every mum's wish for their child is to
be able to see the first steps they take, the first words they say,
the first expression and response they give. We don't care how late
they are going to say their first word, their first step, etc so long
as we see improvements and results, right? Maybe for some, it a little
achievement but to us it is a BIG achievement. You are lucky that you
have therapy in your country such as Hyperbaric Oxygen and Embryonic
Stem Cell. Over here in Malaysia we do not have all those. We depend
soley on PT and OT. Even when we want to get sponsors to purchase
'special' custom made equipments for our special children here from
the Welfare Dept it take years for us to wait. And what more if we
were to purchase advance equipments such as what you have in your
country, it would definitely be TOO expensive for us. It is truly
heartbreaking when we want to help the best for our 'special' child
but just can't because of financial problem. Like yours my little
Marvel is also an angel to me, I love her very much especially when
seeing her smile everyday in spite of the 'cross' she's carrying. I
only pray and hope for a miracle one day that she would be able to
walk. By the way Felicia, how much did you pay for the Hyperbaric
Oxygen and Embryonic Stem Cell Therapy you did for Amanda? And for the
Embryonic Stem Cell Therapy, how is the process? Does she has to
undergo surgery or whatsoever? Is this process painful? I would love
to see the video of Amanda sitting. Pls. email to my address below :
Thank you and Keep in Touch