I've been a sort of silent member for awhile. Grad school, a new
city and relationship, and learning about my narcolepsy pretty much
took up all my energy. I went to a sleep meeting with Laura a few
months ago and it was wonderful. All of you who were there really
made me understand that I was not crazy, that what I had been
feeling was real, and reminded me that it is good to have a sense of
I've been working on my MFA (Master of Fine Arts) in Creative
Writing and this final year is my thesis year. I write about many
things, but lately writing about narcolepsy, informing people, and
using narc in some creative capacity has gone to the forefront of my
work. I have tons of medical resources, and my own experiences, but
I am looking to collect stories from other narcoleptics. Everything
would be done professionally. I wouldn't release your name if you
did not want it to be known, I'll be recording our chats and taking
notes, and basically presenting your story as is - no changing
around what you tell me.
What I am hoping to do is have a collection of narratives interwoven
with the history of narcolepsy and the medical side of things. This
is something that I've been working on for some time, and what my
manuscript lacks are the voices of other narcoleptics (or anyone who
has hypnogogic hallucinations, lucid dreaming, eds). There are
currently no books out there that represent our community, and when
I was searching for the personal side of narcolepsy, this frustrated
me. I wanted to know how people were living with this disorder, how
they managed, found healthcare, raised families, etc. I knew how
the disorder worked and I knew what meds to take, but sometimes you
just need other people.
Which is why I'm mailing out to the support group and asking for
volunteers. If you are interested in being a part of this project
or would like more information, please email me at
(there is a #1 next to the k, not the letter l).
Or call my home at 614-263-4175.
I have limited transportation (Columbus area) so would prefer to
meet somewhere in this area, but if you want to talk over the phone,
I'll gladly pick up the phone bill and call you. And I can arrange
to meet up in the nearby Columbus suburbs.
If you need credentials or anything like that, just let me know. As
of now, I have one published piece about narcolepsy, but it is not
coming out until January 2005. Thanks for the time.