DO YOU TAKE XYREM?
If you do, there are a couple of ways you might be able to benefit and to be of benefit to others.
1. A research study is being conducted in the Cincinnati area. They are looking for patients diagnosed with Narcolepsy who are between the ages of 18 and 55 and have been taking Xyrem for more than two months but less than two years. He or she will receive $175 for their participation in the study. Narcolepsy Network will receive $75 for each referral by them. So if you are interested, contact Natalie toll free at 888-793-1088 and tell her that you were referred through Narcolepsy Network.
2. Jazz Pharmaceuticals, the makers of Xyrem, want to talk to a group of patients who are currently taking Xyrem or who have taken it in the past but stopped using it within the past 90 days.
The company is in the process of organizing a patient advisory panel to meet just prior to the Narcolepsy Network Annual Conference in Las Vegas. (The conference runs from October 14-16.) If you qualify for this panel, you will be paid $750 for your time and input, plus your travel and accommodation expenses to Las Vegas for your participation in an orientation dinner followed by a one-day meeting. (You will not be reimbursed for expenses related to attending the conference, per se.) If you are interested in participating, respond by e-mail to opt-in@...
. Include your name, daytime and evening or cell phone numbers, your time zone and the latest they can call in the evening. Or if you prefer, you can call toll-free 866-991-8883 between the hours of 9am and 7pm Central Time.