PLEASE POST OR SHARE THIS NOTICE
[help us come up with a catchier name at our first meeting!]
We are people with narcolepsy, idiopathic hypersomnia, & the like.
We exist to help each other & anyone interested in learning more about these disorders of sleep (and wakefulness for that matter).
Our first meeting will be on Sunday, March 21, 2010 from 2:00-4:00pm in the basement of Second Impressions Consignment & Resale Shop,
5381 North High Street, Columbus, OH 43214 / Tel: 614-781-1572.
Light refreshments will be provided. Bring something to share if you wish.
DIRECTIONS: Second Impressions is located on the west side of North High Street (RT 23), 1 mile south of Dublin-Granville Road (RT 161) + 1 mille north of Morse Road & Graceland Shopping Center. It's in the same building as Arthur Murray Dance Studio.
NARCOLEPSY IS a chronic neurological disorder, involving irregular patterns in Rapid Eye Movement (REM) sleep and significant disruptions of the normal sleep/wake cycle which result in sleepiness at unpredictable times. Because the sleep/wake patterns are disrupted, most people with narcolepsy rarely get a 'restful' sleep. Many experience disrupted or fragmented nighttime sleep involving multiple periods of arousal. Their dreams are often vivid, realistic, and frightening. They can occur during the transition between sleep and wakefulness, while the brain is neither fully awake nor fully asleep. This is also when they may experience sleep paralysis - a temporary inability to move upon waking. Throughout a 24 hour day, people with narcolepsy often have microsleeps, or fleeting moments of sleep, which may intrude into the waking state. They may have episodes of automatic behavior - the performance of a routine task, without conscious awareness if doing
it, & often without later memory of it. Cataplexy is a symptom unique to narcolepsy but does not have to be present for diagnosis. It is a sudden loss of voluntary muscle control, usually triggered by emotions such as laughter, surprise, fear or anger. The cataplectic attack may involve only a slight feeling of weakness and limp muscles or it may result in immediate and total body collapse, during which the person may appear unconscious, but is actually awake and alert. Cataplectic episodes are related to the loss of muscle tone usually associated with the normal dreaming stage of sleep called rapid eye movement (REM); as a protection against acting out one’s dreams, the muscles become immobile or paralyzed.
The study of this unique but not uncommon sleep/wake disorder is the key to understanding the mysteries of sleep for all of humankind.
Much more can be learned by contacting the Narcolepsy Network, Inc.
Tel: 1-888-292-6522 or www.narcolepsynetwork.org.
Join us at our next meeting. We help others because someone was there to help us.
Marilyn Hallowell <marilynliz@...
Laura J. Evert <dreamiestgirlever@...
Ellen Haider <ellenhaider@...
rev. 03/2010 lje
A great tool for someone who believes that she or he might have a sleep disorder is the Epworth Sleepiness Scale. This simple test, developed by Dr. Murray Johns at Epworth Hospital in Australia, allows a person experiencing excessive daytime sleepiness to get an idea of the severity of her or his condition.