hello rebecca + welcome.
to connect with other parents start here:
www.narcolepsynetwork.org/forums. also try the message
boards at www.talkaboutsleep.com. as diagnosis is
occurring at younger ages, there are many parents to
go to for support + understanding.
Fw: new diagnosis
Posted by: "Rebecca Stephens"
May 30, 2008 3:26 pm (PDT)
hope this goes through this time....
----- Original Message -----
From: Rebecca Stephens
Sent: Friday, May 30, 2008 5:08 PM
Subject: new diagnosis
My 14 year old son has just been diagnosed..... I am
22 miles North of Louisville, outside of LaGrange,
Kentucky. There does not seem to be a support group
anywhere near me......
There seems to be one in Indianapolis, and then there
is your group in Ohio......
I am really needing to talk to other parents of kids
with narcolepsy.... can you help?
Thanks for your time and consideration.