Thank you for the thoughts. I did have a giggle at the thought that, post test and results, I might find that I have narcolepsy and need to get rest in the middle of the day. There are so many who think that my office does nothing, so I thought "wouldn't it be funny if they asked about why I get to take a nap?" Hehehehe. totally evil and probably a way to help me relax. The test is tomorrow into Tuesday.
> wrote: Janice (and everyone else :-),
I had the same perception of narcolepsy when my doctor first suggested it to me, so I can
definitely understand people's reactions when I tell them. Honestly, I feel like it makes
things easier if I can laugh about it and joke about some of the misconceptions.
Sometimes I make fun of myself because some of the things I do are really funny, but then
I go on to talk about how or why that stuff happens.
I usually say that yeah, there are people that fall down asleep, and they may even notice
that I fall asleep at inappropriate times, but narcolepsy is a lot more complex than what we
Like Lynn said, I use something common. When I was in college, I explained it using an
analogy to cramming for a test. Now, most people have crammed at one point or another,
and that heavy, tired feeling that you can't shake? Yeah, that's what I feel on a daily basis
unless I have proper meds and take care of myself. And sometimes even with meds, I still
feel like that. When other people go to bed to rest up and wake up refreshed, I wake up
feeling the same way.
I'm really lucky. Even when you have other friends with disabilities, it still takes a lot to
understand our differences sometimes. One thing that made my boyfriend (now fiance)
and I grow closer was when he was diagnosed with Diabetes 1 and the switch to meds
made him ridiculously tired and low energy. We were able to talk about coping methods
and frustrations really easily because we were both able to relate to one another. His
neuropathy made it much easier to understand my fibromyalgia. Even though we can both
look pretty "normal", we don't always feel that way and it was so, so good to have a
partner that understood that.
Anyway, thanks for all the food for thought!
A ship in the harbor is safe
but that's not what ships are built for.
Grace Murray Hopper
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