Why don't you tell more about distal arthrogrypois. I for one would love to learn about it and I am sure others here would too.
Nothing is too rare that it can't be talked about.
Thank you everyone for writing me back, your stories helped. I'm
still learning that there is alot I either did not understand or
genetics has come a long way since my daughter was born. I knew there
were two forms of arthrogryposis. I did not know how wide spread the
severity. Based on my daughters' medical records I believe she has
distal arthrogryposis. Am I in the right group? I do not see any folks
with this type so far in this group. One of the people that wrote me
back said that distal arthrogryposis was hereditary. I did try to write
a few clinics, but they have not responded. Can anyone send me in the
right direction or advise me.
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