1st of all, its AMC not ams.. (arthrogrypoisis multiplex congenita)
2ndly, i googled arthrogryposis lifespan...& found TONS of pages it basicly
says "The life span of affected individuals depends on the disease severity
and associated malformations but is usually normal."
amcsupport, Inc Vice
In a message dated 9/11/2007 9:04:08 AM Eastern Daylight Time,
Here's "my" answers for you.
1.Does anybody know average life span with AMS..I feel like if our
limited mobility would not be able to exercise would lead to
unhealthy lifestyles.. .
-- I did some checking around on the web, but couldn't find any discussion
about lifespan for people with AMC (Like they say, "no news is good news"). My
belief is that it does not significantly shorten our lifespan. AMC affects
the muscles and joints, and not the organs (generally). Arthritis will likely
set in sooner than others though and so we "might" be in more pain than
others from that. I'm taking the optimistic route though and not worrying about it.
2.DO other people hurt everyday they wake up and find it hard to
-- I'm only 25 so far, but as of yet I don't have any pain when I wake up or
any other time.
3.What type of meds do you take to help with the pain and make
-- No meds, I don't own any medicine. I prefer alternative treatments,
though I'm very healthy so don't even need that.
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