Subscribers on the 0-5 eSupport Group list should be parents, extended family members, and/or caregivers of children with PWS aged birth through five years. Additionally, some helping professionals may join the list in order to better understand the experience of families, to learn more about PWS, and to offer helpful comments and understanding from their perspective.
Due to the nature of Prader-Willi syndrome, symptoms tend to change over the course of the individual’s lifetime, therefore PWSA’s eSupport Groups have been organized according to children’s ages: Birth to 5 Years; 6-12 Years; and Teen Years. There is also a Sibling eSupport Group. Support and input on the 0-5 eSupport Group is welcome from care providers and parents of children of all ages, with age-related issues being addressed.
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- This is a restricted group.
- Attachments are permitted.
- Members cannot hide email address.
- Listed in Yahoo Groups directory.
- Membership requires approval.
- Messages require approval.
- All members can post messages.