Hi there Ron!! Welcome to our family. My son Luke is 2 1/2 and has x-linked MTM. We live in southern CA. You should join Facebook. Numerous families are on there and we talk in that forum about anything and everything almost daily. If you should have any questions don't hesistate to email me. How old is Ronnie? Where do you live?
--- In Myotubular_Myopathy@yahoogroups.com, Ron Martin <hdwideopen@...> wrote:
> i sent info on ronnie feuer ok to use i'm his dad not real good on the laptop but tryin to help with info