I have attached Michael Mcgrath's biography below which give details
of the the type of Muscular Dystrophy that he has. It seems that he
was diagnosed with one type and then re-diagnosed some time later.
Thanks for the link - I haven't had a chance to explore it in any
detail but I will do in time.
Biography Michael McGrath
Born in 1965 in the UK, Michael was educated by the Jesuits at St
John's Beaumont near Windsor in Berkshire and then at Stonyhurst
College, near Clitheroe in Lancashire. In 1984, Michael turned down
one of only 10 places offered in the UK for the esteemed 5 year Savoy
Trainee Management Programme in London. In 1988, Michael graduated
from Oxford Brookes University having achieved a 2.1 BSc (Hons)
degree in Hotel Management and Business Studies.
On the rare occasion when Michael is not working on The Muscle Help
Foundation and in particular pole2pole matters, he is contracted on
tactical business development assignments that focus on people
development, performance improvement and employee motivation. He has
worked with a number of leading UK agencies. More recently and as a
direct result of recent achievements, he is now an established
inspirational presenter on the international speaker circuit.
§ At age 14, Michael wanted to be a professional golfer, having been
taught by Alex Hay, now one of the world's leading TV broadcasters.
§ At age 15, Michael was selected to play at Junior Wimbledon
§ At age 20, after two years of trying to find out why Michael was
loosing his muscle bulk, he was diagnosed with what was at that time
one of the most rare forms of Muscular Dystrophy known as Emery
Dreifuss Syndrome, a progressive muscle wasting disease
§ At age 23, Michael completed a remarkable sponsored golf challenge
at Ashridge Golf Club near Little Gaddesden in Hertfordshire that
regularly features in the top 100 golf courses in the UK, not only
competing but walking with great difficulty the Par 72 (6,505yds)
course, not once but twice, a distance of just over 9 miles!
§ At age 26, Michael experienced 'terminal velocity' by hurling
himself from 11,500ft out of a perfectly good Twin Prop Trilander for
charity at Weston-On-The-Green, near Oxford with a cameraman from the
Red Devils Parachute Regiment
§ At age 28, Michael joined the 'Lord Nelson' at Southampton, one of
only two 'Tall Ship Square Riggers' in the world that actively
promotes the integration of able-bodied and physically challenged
people, as a member of the crew sailing around the Canary Islands.
The JST (Jubilee Sailing Trust) is the only organisation in the world
to be able to offer tall ship sailing holidays to people with
physical disabilities. As an organisation, the JST fervently believes
that all individuals should have the opportunity to sail a tall ship
§ At age 29, after learning how to ride, Michael sat astride a 17
hand skewbald cob called 'Major George', taking a creditable 2nd
place in his dressage class at the Lloyds TSB National RDA (Riding
for the Disabled Association) Championships at Highclere Castle, near
Newbury. The aim of the RDA is to provide disabled people with the
opportunity to ride and/or to carriage-drive to benefit their health
§ At age 34, whilst mentally preparing to have a pacemaker fitted,
Michael's diagnosis was changed to 'Limb Girdle Muscular Dystrophy'
as a direct result of the advances made in the field of neuromuscular
research. As a result, he was told that his heart was unaffected and
that a pacemaker would no longer be required
Despite the limitations of his condition now requiring a more
sedentary life-style, Michael continues to pushback and confronts
head-on the challenges that life presents. Notwithstanding the
physical difficulties that Limb Girdle Muscular Dystrophy brings,
Michael remains utterly focused on maintaining his current level of
mobility through regular exercise, sheer determination, immense self
belief and strength of mind
Since July 2002, Michael's focus has been on planning and launching
The Muscle Help Foundation and preparing for Antarctica and the South
--- In Myotubular_Myopathy@yahoogroups.com, redscootee@w... wrote:
> Toni, I am going to see if I can find the article on the MDA Canada
> site. I am including the link for you to check also. I was having
> trouble getting into the newsletter this morning. Wonder if it is
> sunspots?? The newsletter is called Connections and that is where
> said she saw the stats.
> <a href="http://www.mdac.ca/">MDA Canada</a>
> I am going to add Michael McGrath's site on our site also. Do you
> what type of md he has? I did not see mention of the type he had on
> take care pat