Sorry to hear about Jacob needing the eye surgery - that is very scary :(
What is the other procedure if the contact lens doesn't work? (Just curious.) I think that you will be able to keep his eye hydrated/ lubricated enough for the contact to work- I mean, you are an excellent mommy and care provider. If anyone can do this, you can!! I will remember you in my prayers.
Other than the eyes, is everything going ok? I am so glad that you get along with the nurse so well- that is such a blessing!! Are you still with PSA? One question if you are: Does PSA know that you have a 'non- work' relationship with the nurse? LOL Talk to you soon.
Amanda <dhahjh@...> wrote:
Jacob will be having eye surgery on August 27. He had an
appointment this past Wednesday with a ped opthalmologist who
specializes in cataracts. She said that she is almost certain that
Jacob can't see at all with his right eye. However, Jacob is not a
candidate for routine lens replacement - the typical procedure for
cataracts, because of his subluxated lens. Basically, he has no
structural support for his lens. So, they will remove the lens from
his right eye and he will have to wear a contact lens in that eye -
yes, a contact that we will have to put in and take out everyday.
The reason he can't just wear his glasses is because his left eye
will continue to be extremely nearsighted and, after the surgery,
his right eye will become extremely farsighted. She said that is
too much on his
brain for glasses to correct. So, as you all
probably know, most mtm boys have dry eyes from lack of blinking.
If we aren't able to keep his right eye moist enough or if he just
can't tolerate the contact, there is another procedure that can be
done. It is not something they prefer to do on children, but it may
become the only option to save Jacob's vision.
As you can imagine, this is very scary for me. Jacob's vision is
one thing he does have and it is very important. Please pray that
all goes well!
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