>I went to an MS conference/seminar 2 weeks ago and the neuro (who I
> now LOVE and hope he will be my new neuro when insurance changes in
> Dec!), pointed out how the tests we have to monitor MS (MRI), don't
> really tell us enough. He showed an amazing set of slides to us...6
> months worth of MRI's for a patient, one per month, who was in a
> study that he was working on. The MRI's were all lined up to show
> the same view of the same parts of the brain. Each month there were
> changes...new lesions, lesions gone, big black spots, recurring
> spots, almost no spots...all varied, random. The most shocking part
> of the six months worth of MRI's (which seemed to show a LOT of MS
> activity), was that the patient in the study was NOT experiencing
> ANY "attacks" of MS the duration of the study! He clearly pointed
> out that the lesions come and go, they get bigger and smaller...it's
> the brain!...it's a living thing! The medical world can really
> only guess (educated, yes, but it still is often a guess) at what is
> really happening. We DO need to monitor things, because you never
> know what's going on if you don't...but as he pointed out, we need
> to take everything with a grain of salt. Judge your treatment
> mostly on how you feel and how you feel about the treatment. Feel
> better, be stronger, be active. It was a very inspiring
> seminar...mostly just to see an MS expert talk about how little we
> know and how he really is open to helping people. It was just
> awesome and he didn't flinch when I sent up a question on LDN (ok,
> maybe a little--the function WAS funded by Avonex!--but he said if
> it were his patient and it worked for them, he'd support it! ;) ).
> Best of luck with your decision on treatment...I agree with what's
> been said about increasing your dosage.
> Christine in Vegas
> Yahoo! Groups Links
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