I wish I could help, but I know of no doctors that visit our site other than
Dr Misra. I do know that pharmaceuticals will give patients (terminal
patients) drugs not yet approved by the FDA. They call this 'compassionate
use'. Maybe you could start trying the pharmaceutical companies to see if
they have anything. Or try a 'teaching' hospital. They can be excellent
places to go for new techniques, drugs, and open minds.
From: brdietrich11 [mailto:brdietrich@...
Sent: Saturday, January 24, 2004 1:29 PM
Subject: <SPAM> [GIWorld-Hepatitis] Re: When to start
Does anyone know of any specialists that can give me their best
educated guess? I know that if I get rid of the Hep C, I am a
candidate for the trial. I don't have that in writing, but I trust
the doctors I have for the brain cancer. I trust that they are going
to do everything they can when the time comes--I do have verbal
assurances from the doctors and they know exactly what my situation
is. I also have more opinions (4 nays 1 maybe) from doctors that
treating the Hep C will not hasten the return of the cancer. One of
the "nays" is from a very well respected institution. I also have
opinions from this same institution that the viral loads in HCV/HIV
patients, in which the immune system is compromised, do not fluctuate
like you would think they would. My WBC counts have been fine over
the last 40 weeks while on the chemo. I am not worried about quality
of life. I am worried about living and I do think that I will
outlive the statistics since I am young. I do not have any problems
with dying, I consider myself a Christian and saved. My faith
waivers, but in the end it is all one really has.
But I will fight up to the point where I cannot type another word on
Please, can anyone give me a contact to specialists that have dealt
with cancer/chemo and HCV infection? I would think that if you
looked at the statistics, you would find that this cross section of
patients is out there and that a doctor or center somewhere has made
it their livelihood.
At the least, can someone give me the contact information for the
doctors that visit this forum?
I sincerly thank everyone for their input.
--- In GIWorld-Hepatitis@yahoogroups.com
> HI.Claudine yre priceless.All the guy needs right now is sound
medical advice,he is a guy 36,and lots of support and encouragement
from the group.The soul is a healer too and faith moves in mysterious
> ----- Original Message -----
> From: claudine intexas
> To: GIWorld-Hepatitis@yahoogroups.com
> Sent: Saturday, January 24, 2004 5:40 AM
> Subject: Re: [GIWorld-Hepatitis] Re: When to start
> Alley is simply being realistic. We've been dealing with the HCV
> issue for years now, and many of us have looked into clinical
> studies. HCV is still considered to be an incurable disease. If
> disqualifies you from a clinical study then going on treatment
> probably not get you in - when you are able to 'clear' the virus
> (have an undetectable viral load) you are only considered to be in
> remission. If you maintain an undetectable viral load at 6 months
> post-treatment (48 weeks of treatment) then you are considered to
> a 'sustained viral responder'. If you are still undetectable one
> after treatment ends then you are considered to have a 'durable'
> You still are not considered cured, and it is still not known at
> point a person might ever be considered cured. Late relapses have
> occurred, although rare. Tests for HCV will still show you
> for the disease since they look for antibodies. Antibodies do not
> least not usually) ever go away.
> As for cancer preventing you from getting into a trial for HCV I
> think this is highly variable. I had cancer, treated with
> 1995, and I was treated in a clinical trial which did include
> --- brdietrich11 <brdietrich@a...> wrote:
> > I know one thing. You probably do not have what your claiming
> > have. If you did, you would probably be a little more positive
> > qualify your remarks with facts. Your comment "I don't think
> > you'll
> > qualify for the cancer trials even if you do get rid of the
> > hep...catch 22" sounds like an attempt to discourage. If you
> > for real, then I feel sorry for you--you have given up. If you
> > not for real, then you have no business telling me or anyone
> > in
> > this forum what you THINK is possible and what is not. I would
> > guess you are probably with an insurance company or someone who
> > a strong interest in seeing people like me give up and die.
> > --- In GIWorld-Hepatitis@yahoogroups.com, "Alley"
> > wrote:
> > > << I have what is called an anaplastic
> > > astrocytoma grade III. If I follow the statistics, I may
> > three
> > > to five years. My goal is to get into a clinical trial but
> > cannot
> > > because they found the hep C. So I am trying to get rid of
> > hep c >>
> > >
> > > I don't qualify for trials either. I don't think you'll
> > for the cancer trials even if you do get rid of the hep, cuz of
> > hep treatment. You need to double check on that.
> > >
> > > I don't qualify for cancer trials because of the hep and
> > of the treatment, I don't qualify for the hep c trials because
> > the cancer etc. Catch 22.
> > >
> > > << What kind of cancers does it promote by the way? >>
> > >
> > > I don't know any more than what the given literature says.
> > might want to delve further into that. There hasn't been much
> > honored study on riba and cancer unfortunately. It hasn't been
> > long enough on hep c people to accumulate data. It may be that
> > triggers cancer (we all have cancer cells in our body, they
> > aren't "on") or it may be a coincidence or both.
> > >
> > > If you gotta get rid of the hep to do more trials, just know
> > genotype 1's have a 50% (or less depends on who you listen to)
> > chance of getting rid of it with peg/riba. With a terminal
> > I don't think I'd worry about the riba.
> > >
> > > You've got some tuff choices out there. Good luck. Let us
> > what you decide.
> > >
> > > Alley
> > > Grand Prairie, Tx
> > >
> > > [Non-text portions of this message have been removed]
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