I have never heard of this happening before! I have no real
ideas, but since your WBC was very low (leaving you open to
infections) I would not rule out some other problem unrelated to the
Neupogen, like maybe a cyst. Be sure and let us know if you find out
what the problem is.
> Hi everyone.
> Hope you all had a Merry Christmas!
> I had gotten pulled from Pegasys/Copegus a couple of weeks ago
> because my
> platelets and wbc had dropped so low. I finally got some numbers
> on them so I
> can understand what is happening a little better...and thanks to so
> many of you
> who wrote gave me some great advice.
> I had a 5 day treatment of Neupogen and it shot my counts way up,
> so I
> started back on the Pegasys. The doc is consulting with an
> oncologist to figure out
> how much Neupogen I will need to take as maintainance to keep my
> Now, something has happened and the doc isn't sure what the cause
> is, but he
> was going to check with the oncologist to see if the Neupogen was a
> factor. I
> was told that I could get some 'bone' pain while on the Neupogen
> and that for
> once, it would be a good pain as it meant the bone marrow was
> kicking in.
> I started on the Neupogen on Tuesday evening. On Friday had a
> pretty good
> backache, and my back felt really stiff. On Monday, I noticed a
> lump in the
> tailbone area...about the size of a grapefruit (around) and it was
> very sore
> around it and very painful to touch it.
> Since I had been diagnosed with Denergenative Disc Disease, with
> sciatic nerve pain in both legs last May, and the lump is in the
> same area the doc
> couldn't be sure if it could be from that or the Neupogen. I hope
> to get
> some info Tuesday on what to do about or who to see with this lump.
> I'm having a very difficult time sleeping because I can't lay on my
> because of that lump, yet I need to, to get relief from the sciatic
> pain. So, I
> have to lay on my side, which helps my neck but makes the sciatic
> nerve go
> crazy. I'm currently not having a lot of pain with that lump but
> my back is
> still really stiff and I have to be really careful about turning
> from my waist.
> I'm hoping someone out there may have some ideas/suggestions about
> lump and what I can do to get more comfortable.
> Thanks to all of you,
> Betty in Arkansas
> [Non-text portions of this message have been removed]
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