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#480 From: "Jacqueline" <jhagmeier@...>
Date: Wed Apr 8, 2009 3:51 pm
Subject: New to the group and would like some input!
kansaspumkin
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Hello group.  I am rather new to this whole TC stuff. My fiance (we've know each
other for 10 years but just now got back together Xmas '08) was diagnosed with
TC in January '08. He went thru chemo and surgery (first surgery was removal of
the testicle, 2nd was in Jan '09 to remove all the tumors from the abdomen and
behind the chest). I've tried to do a lot of research on the topic but I'm still
confused on some things that he goes thru. The last time he had chemo was at the
beginning of December. His hair is starting to grow back and he is starting to
get some "feeling" back into his penis (i.e. stiffness) but we've only been able
to have full intercourse 1 time in 3 months. He was also diagnosed with CHF
about 5 years ago. When we went to Houstin in January for his surgery, he had a
heart defibrilator put in to help control the episodes of heart failure. He had
a lot of trouble getting his magnesium back to normal for a while. However, as
of now, everything seems to be fine, test wise. His tumor markers are clear, his
blood work is normal and the defibrilator and meds are keeping his heart in
check.  So what I'm confused about is.. he's always having dizzy spells and
chest pain and says he just doesnt feel "right". We try to stay home on the
weekends because if he gets too exerted (like walking thru the zoo) he gets
dizzy and starts to feel bad. I love this man to death and want to spend the
rest of our lives together, but what kind of life am I looking for, will he ever
be able to get off disability and return to a normal life? I'm not sure what
kind of help he's getting from his doctor, whenever he tells them whats going on
they just reply with a more bed rest and take your meds answer (FYI he is on
medicare at parkland, so it cant be great!)

Any comments or suggestions are GREATLY appreciated!

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