Hello everyone, I am looking for a date for the SB conf. Yes I might sound crazy asking here. I am just wanted to see who is left. I hope to find someone. If...
Faith: I had my first detethering seven or eight years ago at the age of 27 or 28. It took them 6 months to get to a diagnosis. It was hard finding anyone...
Accessible Housing in Pennsylvania, and in the United States By: Nicole Burch For those of us who are disabled, and use wheelchairs, independence is a great...
HI DOES ANYONE HAVE ANY IDEA ABOUT HOW LONG IT TAKE'S FOR SB BABY TO GAIN HEAD CONTROL. MY DAUGHTER CAN HOLD HER HEAD FOR A LITTLE WHILE, BUT HAS REAL...
I think I sent every group the letter about Accessible Housing. If I didn't, and you would like to see it, please email me @ NSy4490831@.... But for ...
Hi, I am new to the group, I joined about 6 months ago or so and never get any mail from this group. I have my mail preferences set to individual emails and...
My daughter had this problem due to some meds she was on and they prescribed vitamen C to get rid of the sodium. Ask your dr. about this, I give her a liquid...
Hello Thanks for Joining the group , My Name is Lynn and i have a 16 year old daughter with sb , whom just got out of a out of a Body cast and two monts of...
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday June 11, 2004 10:00 am -...
spinabifidacentral@ya...
Jun 11, 2004 12:55 pm
973
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal dBug Swap Meet Saturday June 12, 2004 10:00 am - 2:00 pm ...
spinabifidacentral@ya...
Jun 11, 2004 1:55 pm
974
Hi! My name is Rachel. I am 19 years old and currently 6 months pregnant. My baby boy who we have named Jacob was just diagnosed last week with spina bifida...
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal dBug Swap Meet Saturday June 12, 2004 10:00 am - 2:00 pm ...
spinabifidacentral@ya...
Jun 12, 2004 12:56 pm
976
Welcome Rachel, HI, I am Jacqui a cofounder of this group! I am mom to b/g twins Brett and Brittany who are 14yrs old! Brett was born with Spina Bifida and...
hi. im a 22 yr old female with spina bifida. you cant tell by looking at me that i have it, but none the less, i am quite affected by it (mainly bladder/bowel...
Hi-- My daughter is only 15, but has the exact same situation as you. No one at her high school really knows about the SB. However, very occasionally, she has...
... affected ... Well, I'm not 22, I'm 16, but I do have spina bifida and I am female. You can't tell by looking at me that I have it either, and no one really...
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday June 18, 2004 10:00 am -...
spinabifidacentral@ya...
Jun 17, 2004 1:57 pm
982
Does anyone happen to know any specific links where i could find out if there are any spina bifida groups or organizations in my area, or where such places are...
Go to www.sbaa.org Click on the link on the top that says "local information" Then click on link that says "group members" Then you will see a map-- click on...
Hi all! The group calendar says there's a chat tonight at 8pm. I'm in Washington PDT. Is that 8pm eastern? If it is, I was just in the chat room and nobody...
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday June 18, 2004 10:00 am -...
spinabifidacentral@ya...
Jun 18, 2004 12:55 pm
986
Hello, My girlfriend has SB and tells me that she can feel certain things when she gets certain exams at the hospital but the doctors are almost laughing at...
Hi there! I have Spina bifida manifesta. I know for a fact that some doctors believe people with spina bifida can not feel certain things. however, from...
Thanks for the information Erica. I have always beleived my GF when she told me that but actually we're looking for information which my help to prove to the...
I will do some checking for you. Im glad you believe your gf when she says she can feel certain things, even though the doctors say she cant. I bet that is so...
I couldnt find any specific information regarding feeling in lower part of the body, even despite doctors saying its not possible, but all i can say is this....
