There is a pretty successful surgery called the ACE procedure that many people with SB have done to diminish bowel accidents. This stands for Antigrade...
That link I gave for the ACE procedure did not work. Try this one. One correction to my last post-- this article says that you should irrigate the new...
Hi my name is DeeDee..I just found out that i have spina biftda occulta..Not sure if i spelled that right...My chiropractor is the one who notice it..He says...
Hello! I am new, my name is Mary and I have a Daughter Dominique who is 10 and has spina bifida, I was looking for some information on Non Verbal Learning...
-Hello Mary, Welcome to the group and i hope you find alot of wonderful info here and make alot of great friends, here is a link that might help you out to...
MY SON, ROBERT CAME INTO MY LIFE ON NOVEMBER 6,1977. WE HAD NO IDEA THAT HE HAD SPINA BIFIDA UNTIL HE WAS BORN AT THE NAVY HOSPITAL, IN CHARLESTON,S.C. WE...
I was diagnosed with ankle chariot joint and was told not to walk again. Does anybody have has have any any experierence dealing with type of ailment. John...
hi gorgeous gals and boys. I havent been on here for ages. And I would like to congratulate you all for the tremendous work you are doing. Fantastic and Out...
Tomorrow is my big date, for my operation. They will be fixing my tether cord in my spine. This will be my 19th, cant wait to get this done and over with!...
Hi Robert's mom, Boy dose your son's life and my daughter's life starts out the same. Her name is also Rebecca. She was born at Roper in Charleston on ...
My name is Andrew. I was a member here several years ago but have been away for a long time. I am now returning and hope to be a regular, I have Spina Bifida...
Welcome back Andrew. My name is Bobbie, and I have a 15 year old daughter who walks, but has bowel and bladder issues, as well as a few learning issues...
hello, i have not posted in awhile but really need some advice. bradley is 51/2 yrs. now in k all day program and trying to reach a bowel program with little...
i am looking to talk about spina bifida and hydro, i have a daughter who has this she is 15 and in a wheelchair, she is cath 4 times a day thru her belly...
Welcome Connie. My name is Bobbie, and I have a 15 year old daughter with SB who walks unaided, but has incontinence issues. Did anyone ever discuss the...
My 6 year old had an ace done when she was 3 when they took out her right kidney. I have 2 girls with SB so we were already doing enemas and they work for my...
Please help, Can anyone tell me if they have had any expierence with getting a van donated to them to assist with their mobility needs or know how to go about...
Good Luck finding any help or even getting one donated to you, I have worked on getting a handicap van for a year i have contacted every disabled place around...
hi im new i have a daughter who is sb/hydro t12 level uses wheelchair cath thru the belly 15yrs old and very rotten lol shes had many of surgerys if anyone...
Welcome to the group , and hope you make alot of great friends here , My name is Lynn and i have a 16 year odl daughter with sb , full time wheelchair, shunt ,...
Good Morning everyone. I have a question. I have spina bifida occulta, but I have all the bladder/bowel problems (both are neurgenic and my anal area is numb...
Me. I would be the new member. I'm 16 and I have spina bifida and hope to learn something through this group. I'd also be quite happy to answer any questions...
I hope this question isn't considered inappropriate, but I want to know. Okay, I'm not sexually active or anything, but I was wondering if spina bifida affects...
I didn't think they were even doing those surgeries much anymore. The new surgery for treating constipation seems to be the ACE procedure. In essence, they...
Sorry-- that link was no good. Here is one you can check out for the ACE procedure..... http://www.childrenshc.org/Search/Index.asp?words=ace+procedure Bobbie...
