I haven't read all of the other replies, so I may be repeating what others have already said. I have a daughter who is almost 3 and one who is 6 months. The...
Hey everybody, Just picked up the results of my MRI from Saturday. I won't see or talk to the surgeon until he decides whether to do the surgery so I'm hoping...
YES...you made the right choice! I'm sure you thought thoroughly about your options and made a decision that was right for all of you. I can understand second...
Hello...I'm a 35 year old woman that has spinal bifida. And, lately within the past year have been having alot of problems with forming cysts in the body. Has...
I would like to say hello to all the new members. hope you enjoy the group. I have a question for everyone. I have a 16 year old daughter with sb , full time...
i am a neurosurgeon in india. i have started a organisation named AMEND[akila memorial establishment for neurologically disabled]. I wish everyone in the group...
Hi i had A shunt revision in OCT there is Fluid building on my head and in my belly i was wondering if anyone had this problem i had my old shunt for 24 yrs...
It sounds as if your shunt is blocked on both ends! Please see your Neuro ASAP! This is not something to mess with! Please keep us posted! Jacqui mom to b/g...
Thanks for posting to my question. I was kinda thinking that was the problem We called the dr he was in surgrey all day that he would call asap when he got...
Hi Monica, Nice to meet you. Thanks for replying! Girl, I'm glad you do not have the problem...it is terrible. Hope to chat more with you! Take Care, - Val...
Hi Monica, Nice to meet you. Thanks for replying! Girl, I'm glad you do not have the problem...it is terrible. Hope to chat more with you! Take Care, - Val...
Always remember when you can't get an appointment with the Dr that day go to the emergency room where that Dr practices and you will see them that day. ... ...
HI again i have another question has anyone with the problem i am having ever experience itching no matter what i do or eat or dont eat at all i am itching...
Just a thought re: the itching -- Do you know if you are allergic to latex? Perhaps your underwear/pullups or whatever you wear against your tummy is causing...
Hi-- I never heard of Benefiber, and I'm always looking for new bowel products that will work better. Could you please find out where your mom gets the...
Yeah i am Allergic to latex i wear depends but that is not where i am itching no where near the diapar. I asked Dr he is not sure y i am itching. Dr said that...
u can pretty much get it anywhere u grocey shop or ask ur pharmacy it says from the maker of ex lax but it is nothing like that u can put it in anything just...
HI Lynn, My daughter is 24 yrs old. she also is a full time wheelchair user,vp shunt and has rods. She also is mentaly handicapped (about 6 yrs old). She also...
A shunt series is a set of x-rays that goes from your head to your stomach to see if the shunt is all together. ... am ... the ... has ... deal ... ...
I had that done the first time around before i got my shunt revised My sister is an X-ray tech so if i get something done and i forget what it is i usually ask...
... wrote: Also , if we foster parent in the state of Indiana, adoption ... Scarlett/beth, are you sure about that? I am in indiana and my mother's neighbor...
Thank you for the response , My daughter Amanda went back to the doctor on Tuesday and i talked it over with him about her snapping all the time he did x-rays...
Hi just wanted to let everyone know i had a Shunt seris done yesterday. My mom works at the hospital so we went to see a dr who reads x-rays all day so he can...
My wife has SB oculta and at 41 it has become more painful to deal with. Does anyone know of a doctor in Southern California that deals with adult SB....
Hello Group. 31/single white male in Chattanooga TN here. Would like to hear from others in or near Chattanooga TN with SB. Email me at DrumsOnly@... ...
Hi, pls allow me few momemts of your time. I,m 41 yr old spina bifida adult with usual problems. Few yrs ago i began experiencing bad back pain on lower left...
