Hi Everyone, I just recently found out my 11 month old son has SB Oculta. We just had another MRI done and we have an appointment with a urologist next week....
Hello to everyone: Earlier this evening, I got into a heated argument with the owner of another spina bifida group I belong to. All I wanted to do was to leave...
Welcome Diane! I am Jacqui one of the cofounders of this group! My son is 13 yrs old with SB! I hope that our group will be very helpful to you! Tethered...
Hi, My name is Cheryl and I'm a 28 year old woman with SB. Recently, I've been having quite a bit of abdominal pain. I've gone to the doctor and been told...
Hi, I'm new to the group. My 7-month-old has SB, and, so far, is doing great. I am, however, finding it hard to cope with all of the things that go along...
hello Nice to hear from you and you are right about it being hard with all the medical and what everyone has to say about sb and what to exspect, I am a mom of...
Welcome to the group! All of us here do know what you are going through! It isn't easy being a parent of a child with a disability, but I can tell you that...
Hi Lynn! Brett stopped walking also because of the fear of falling with his braces. He just hated to put them on everyday. He also was having some knee...
Jacque, Ithink it is totally wrong with the way they make the rules up for the specail olympics i think htey should be open to anyone wiht a disablity , not to...
Welcome to the group. I'm a single Mom that adopted 2 girls with SB. At the time I got them the oldest was 7 months, now she is 13 and the youngest one was...
Cindy! We are in Wisconsin! I do know that there are events in our state but unfortunately we have nothing locally! Everything else is over an hour away and...
Jacqui, Have you ever called your local Parks & Recreation facility? Ours does stuff for kids of all abilities year-round. Perhaps if you call and tell them...
--Don;'t feel quilty, for starters it is not a routine choice. Each problem has at times more than one option for fixing it., and in some cases the choice to...
-My caughter is envolved fin Special Olympics and is only orthopedicly challenged.- In spinabifidacentral@yahoogroups.com, ... think ... stop ... this ... only...
Hey everybody, If you're also on Bifida-L then you might have read my post (well, 2 of them since I thought I was sending one here and one there but...
Hi-- so sorry to hear about your situation. Unfortunately, I know nothing about cysts, but if I were in your situation, I would get a couple of other opinions...
Hi everyone, I am new to the world of Spina Bifida and have learned so much in the last month that its a wonder I have been able to remember all of it. My 2...
hi - I'm new to this group. I'm a 27 year old female with SB. I had an oeration done at age 23 and now four years down the road, I have been advised another ...
sardaro
sardaro@...
Oct 17, 2003 11:58 am
725
hi - can you give me the email id of this jeffrey doc? I'll like to email him too as I live outside the US.thanks ... York). ... and ... has...
Hi Guys, I'm from outside the US and have been advised surgery asap. I had planned on coming to the US for grad studies and hence have decide to get operated...
Both of my girls see Dr. Muraszko at U of M. She is one of the nicest people you will ever meet not to mention one of the top neurosurgeons in the U.S. My...
Hi-- Unfortunately, Dr. Wysoff's website used to connect you to his e-mail, but it doesn't seem to do that anymore. So I know of no way to directly reach him...
... Hi dodson; We adopted our little girl with SB when she was 1 yr. old and I remember at the time the doctor's told us that it would be doubtful that she...
Hi dodson; We adopted our daughter at 1 year old. Kendall has SB, hydrocephalus, Arnold Chiari, seizures and scoliosis. We were told by the doctors that ...
Hey, I forget how I went about it but I did find Dr. Wysoff's email and he did respond to me but he didn't know of anyone in my area. His email address is...
Hey everybody, I posted a new member intro a few days ago and I have an update I wanted to share. Someone emailed me directly and it reminded me that I hadn't...
... right thing to do. If you second quess youself to much each time it gets harder. This does not mean go only on the Docs word or not research things...
