Hello everyone, I was 27 when a chiropracter discovered that i have spinabifida occulta. I'm not sure if this is what this group is for but it would be nice to...
hey guys my name is brandi and i am 5 months pregnant. i just found out that my lil boy im going to have in january will have spina bifida and will have to...
I'm a 20 year old male going to college to earn my degree in Business Administration. Right now, I'm at a JC and will hopefully be done within a year to...
Repressive stereotypes and misconceptions lead people with disabilities to second-guess their potential and desirability. Clearly the negative feelings that...
Hi. This is my first post to this board & I look forward to sharing info with others with SB. I had a shunt revision 6/25/03. My doctor left the old shunt in...
... to ... and ... especially ... Debbie, im new here to i jsut found out i was born with sb 1 week ago i have 2 children and so many questions im really sad...
i really need to talk to someone who knows what all this is about i was diagnosed 1 week ago im 37 female 2 children ages 16 and 11 i have had problems for...
My 13yr old son with SB is now wanting to venture out to outside of school events! Besides the fact that I have to drive him to and from these places, I am...
Hi new mom trying to find some organizations or groups that help people with equipment for our sb kids? I am looking for a bike for my daughter. As wee all...
Cynthia - here is the original post about the bike: From: mom2bei Date: Thu Aug 7, 2003 4:59 pm Subject: last chance for a bike I have a 3 wheel bike for...
Jacqui, As a mom I can totally understand how you are feeling. My daughter is 11 and I know it will be soon that she will be wanting to do things without mom...
Congrats on the pregnancy! It was almost 2 years ago, when I discovered that the baby I was carrying had SB. I was an emotional basketcase. We traveled to...
My oldest daughter is 13 and weighs 111 pounds, she uses 1,100CC's of water with salt. My youngest daughter is 5 and weighs 35 pounds, she uses 350CC's of...
Hey Jacqui, It's Mon from the NF group. Gosh, can I see both sides of this one. As a parent I would have the same concerns and worries. Sometimes, I wish I...
... As a mother of a 13 year old daughter (and a 5 year old too)with SB I think you need to be very careful if you are allowing his non SB twin sister to do...
You misunderstand! This is an event that he could not attend last year because he was only in 6th grade! Even though they are twins, they are separated by...
... in S.A. Texas we have a resource library for parents. The city ones are too out dated. Please remember that if you check on out. What they say is true:...
... does not develope later. Unless one of them has a problem I would not worry about it. But do tell you child if they are a female to take folic acid...
... cna't protect him forever. He will also learn there are many good people out there. As with any kids if he is mature enough give it a try. Try small...
... 600cc. Seems like a lot but it is what works. She also use a 14fr cath. Everytime she goes to the hosp, they want to us a 10fr because of her size. I...
My son went to his event last Wed and had a wonderful time! It is a church based activity, but not through our church! It is one that is open to all children...
Oh Jacqui - I'm so glad your son got to go to his event. It's never easy to let kids go by themselves - even typically developing kids! LOL! I understand about...
bie, im new here to i jsut found out i was born with sb 1 week ago ... so ... they ... the ... Lois, I am sorry about what you are going through. I dont really...
