Dear Angie, Hello, my name is Christy! I am a 26 years old and alsohave spinabifida occulta. I had tethered cord surgery this pastOctober, and I can totally...
... lumbosacral ... has ... A friend of mine has one my mother saw it once and described it as a 'horse's maine' my back is like a patchwork quilt. gerald...
... lumbosacral ... has ... A friend of mine has one my mother saw it once and described it as a 'horse's maine' my back is like a patchwork quilt. gerald...
I don't know what happen to laura...We had our differences thats for sure..But I like the computition both trying to do the best with our clubs...If the...
... In my case, I have a very small patch of hair that is located directly above a small indention on my lower back. The best way I can describe it is.. it is...
According to the home page we have 1183 members. Where is everyone? I think alot of people switched to the SB friends & family group and that's great but not...
Hey everyone, I am so glad this board is up and running again. I bet people just haven't thought to check back here since the board was down. My big question...
Hi all! Long time no see! I just wanted to let everyone know some good news! We wrote the folks from Computers For The Disabled,and they will be sending us a...
Hi Everyone! My name is Michelle and I live in Jacksonville, Florida (about 2 hours North of Orlando) I'll be attending the conference next week as I hope...
Hello! I was contacted by a family in Italy with a 10 year old child with the condition myelomengocele and a loose bladder. They have obtained opinions from...
Hey everybody! We are writing to you all to let you know about a new website that we have put together called "Connect." Connect is a website for people in...
to treetoad3gsb: excuse my ignorance and confusion, i'm not in the medical field. i suspect the case falls under urology, but a corrective operation would be...
It sounds to me like this family is in need of an entire team of specialists that work with children with Spina Bifida (myelomeningocele)! There are great...
--I am not sure of the exact problem, it sounds like you say that he leaks or just goes. Have you considered an atrifical spinter. There are a good many...
Hi all! Just wanted to let everyone know,I will be geting a computer soon from Computers For Independence. I will be able to post and chat now alot more since...
Just wanted everyone to know,I am finally online from home!!!!!!!! Now,I will able to join weekly chats,and post more messages. I can also be reached at...
Hi all! My daughter Jazmin justed had Urethral Dialation on Wednesday.Jazmin is two and half years old. I give her ditropan 3 times a day orally and twice a...
Just a note to let ya all know I am online at home now. I can be reached through AIM if anyone would like to chat sometime. I will be able to chat and submit...
My 15 year old daughter with SB had the ACE/MALONE surgery in 1999. Since then she has had very few accidents with stool. For the past 3 weeks she has had...
HI!!! First off I'm new here. Secondly, Im a 16 year old girl who in the future would like kids. Now instead of going to the doctor my mother wanted me to go...
... birth. The mother has SB. She had the child vaginaly. Here is the funny story. She thought she had a bowel movement so she called the nurse into the...
