Hi. I have only had the catheter out since Friday, but it seems to me that it has worked. I used to be able to "pee" a little without urinating and now I...
Hi everyone, I am 25yo and I have SB. I also have a son who is about to turn 5yo. I didn't know my situation was unique until I tried to find out information...
Hi my name is Cynthia, I have a daughter who is 12 with sb. It has been a while since I visited this site but I have a question, does anyone know of any type...
Cynthia, Have you called support or service groups in your area? I'm thinking of groups like Easter Seals, Rotary Clubs, Lions Clubs and groups like that. They...
... you child for every program that is out there. Your may or not need it, but at least you are on the list incase. Some programs have very long list. Here...
My name is Dot and I live in Oshawa, ON, Canada. My 33-year-old roommate Michelle has SB and hydro, and happens to be a full-time wheelchair user. My...
I've been having the same problem, re: not receiving emails from the group. Maria ... family ... while ... set ... actually ... that ... a ... the ... the...
Subject: Don't drink and drive ... it is worth while. ... sign your name ... 1998. ... drunk driver 01/01/96. ... 01/99. ... July 9, 2000 when they were...
Heaven's Very Special Child A meeting was held quite far from Earth, It's time again for another birth. Said the Angels to the Lord above "This Special Child...
Heaven's Very Special Child A meeting was held quite far from Earth, It's time again for another birth. Said the Angels to the Lord above "This Special Child...
CONGRATS on your nephew! You are suck a great sister to do this! What to expect next is a hard question to answer because every child with SB is different....
I wanted to post a little about myself. I am 25 and have a 5 year old son. I am a stay-at-home mom and take home study courses. I am studying to be a...
... parent or family member to understand. The thing on the cranberry is true. I forget what is in it, but it helps prevent the bacteria from sticking to the...
here is some information for those of us that suffer from a latex allergy. I was in hospital for chiari decompression surgery 3 months ago and found out of...
Hi all, I am a brand new member, I don't know what took me so long! My husband is 52, and was born with Spinabifida (SB). He is considering surgery to rectify...
Hi Laura, my name is Shanda i'm 28 and have SB. My only loss of function from it was no bladder control. I'm not in a wheelchair or anything. When I was 7 I...
Hi, my name is Susie. I need help understanding my unique case. When I was two months old, i began having seizures causing me to pass out. Due to this, I...
My first suggestion to you is this - GET YOURSELF TO SEE A NEUROSURGEON! Take those xrays with you that were taken by the Chiropractor! It sounds to me as if...
If you go to SBAA.org and goto the pictures of the conference you will see two of my kids. It asks for a code which is listed to the left. On picture 62266...
Hi everyone! My name is Meg and I'm almost 18 years old. I was born with spina bifida and hydrocephalus. I am starting university in the fall. I'm looking...
Hi! I am new to this so I am going to try. I am anxious to be able to communicate with others born with SB. I am 34 years old, married, and am a teacher. I am...
Hi Debbie, I'm Shanda. I'm 28 and from Ohio. I have SB and I'm a mother of 2 boys. They are now 7 and 8. They are the joys of my life. When I was 13 the...
i'm new to the group and i'd like to say hey to you all. i'm a divorced 32 year old mother of 3 wonderful children ages 12, 10, and 5. my youngest is a level...
Hello: Just a little about myself. My name is Denise friends and family call me Dee for short. I am 30 yrs old and am of Puerto Rican decent. At birth I was...