Hi Popeye! My son is 13 and his level is L4/5 and he had this done years ago to help with his cathing and it was the best thing we ever did for him! Please...
Hi...my name is Jenny...I'm new to the Spina Bifida Chat. I live in Australia and am 33yrs of age. I basically just wanted to come into the Spina Bifida chat...
My granddaughter is having all kinds of bladder problems. Please does ayone know of a hospital that really works with kids with this problem. We live in Texas...
I had something similar beginning in about 1996. I had a pressure sore that would not heal and it became infected. I had an operation on Halloween that year...
Thanx for ur message lobster79. I have a few questions to ask you about the amputation. My real fear of having the Hind Quarter Amputation is when a couple of...
Hello everybody I just wanted to come on and say hi and to see how everybody's week is going mine is doing ok I guess I just can't stand for the weekend to get...
Hi Everyone, My sister recently had a baby boy with spinabifida and we don't know much about it and can use all the help we can get. He has the severest form...
Hello Stardustiii, Welcome to the sb sight , congraduation on the new baby in the family , I a mom of a 15 year old girl with spina bifida. you are all doing...
Welcome! And congrats on your new nephew! The first place you may want to look at for information is the national sb site. www.sbaa.org You will find alot of...
Here are some outstanding websites from the Spina Bifida Winter Edition Newsletter 1)www.fetal-surgery.com-provides interesting information regarding surgical...
Hope you all are having a safe and wonderful summer with your children and keeping cool, it has been so hot here the last couple days be glad when it cools...
Hi everyone. I made it through the bladder augmentation and vaginal sling surgery. I have had a really rough time with this surgery. I still have a lot of...
hello everybody I just thought I would post to see how everybody is doing and see how your weekend is going mine is going nowhere again as usual anyway I was...
I was just wondering when I go to the chat no one is there.I'v checked the calender and you have to have an appointment. You have to be kidding.Well, how do...
If you'd like to set up a chat time just come to the site: http://groups.yahoo.com/group/spinabifidacentral/ Click on the calendar along the left side of the...
Hi, My 23 yr daughter had the surgery in early Feb.2003. They are now talking about doing an bladder sling, We will find out on WED. I'm trying to find out if...
I had the bladder augment and mitroffanoff done at the same time back in December of 2000, I'd be happy to talk about it with you if you want to email me at...
Hi. I have only had the catheter out since Friday, but it seems to me that it has worked. I used to be able to "pee" a little without urinating and now I...
Hi everyone, I am 25yo and I have SB. I also have a son who is about to turn 5yo. I didn't know my situation was unique until I tried to find out information...
Hi my name is Cynthia, I have a daughter who is 12 with sb. It has been a while since I visited this site but I have a question, does anyone know of any type...
Cynthia, Have you called support or service groups in your area? I'm thinking of groups like Easter Seals, Rotary Clubs, Lions Clubs and groups like that. They...
... you child for every program that is out there. Your may or not need it, but at least you are on the list incase. Some programs have very long list. Here...
