Sharon There are many degree off add some are very mild to servere..I know when I was in school I had hard time concentrating,,But at that time this was not...
I am a 32 yr old with sb and a tethered spinal cord. I had a surgery called gastrocyctoplasty done in 96 for the 2nd time. Now since 2002 i have had severe...
Hello everyone, has anyone out here had a fundoplication procedure done? Or do you know anyone who has had it done?? I have done all kinds of research on the...
I know when this group was still a club there was a post about a lighted cathing mirror that clips onto the toilet. I have searched and cannot find it...
hi anybody in this group ever had a colostomy? my doctor wants to do that surgery on me because all other bowel management methods have been tried without much...
Disabled Activists Arrested in Texas Fri Apr 11, 4:20 AM ET Add U.S. National - AP to My Yahoo! By JIM VERTUNO, Associated Press Writer AUSTIN, Texas -...
I have a daughter that is 6 years old and has SB. She is in a wheelchair. We are looking for for a bigger house because we are outgrowing the one we live in...
i wanted to kow if anyone with sb has been diagnose with dyspraxia. i was just told recently that my daughter has it, she is in kindergarden and is having some...
I am new to the group. My name is Belinda and I am 29 and live in TN. I found out I had spina bifida occulta about 1987, I was a Freshman in high school....
wow, its been quite awhile since ive been to the group....kheira is 2 now......recently she had a seziure that lasted an hour and a half, it wasn't caused by a...
wow, its been quite awhile since ive been to the group....kheira is 2 now......recently she had a seziure that lasted an hour and a half, it wasn't caused by a...
Nice to see you are all doing well Amy, you have been through alot it sounds like. but in the ending of it all you see the wonderful things your daughter is...
OMG, Amy! I thought you had fallen off the face of the earth! LOL! Glad to hear Kheira is doing so well. Anna (11 yrs old next month) had the same surgery on...
Hi everyone. My surgery date is May 20th for my bladder augmentation. I have to go back May 9th for all the preop stuff. He told me that I would be off work...
the doctor also said that the surgery might help my constipation, but that it could also cause diarrhea which would be really bad for me since i'm incontinent....
Hi, my daughter is always really badly constipated and nothing has worked for her so far. We have tried the fleet enemas, the balloon enemas, all kinds of...
hi diane!! yeah we're still living in ohio.....shelby actually....i think i was in mt vernon last i talked to you....kheira actually walked the other...
Hello my name is Barbara my daughter is 7 and we have a pretty hard time keeping her bowls cleaned out but we have started giving her trigger foods such as for...
Hello everyone! My name is Mary and I live in Southern Maine. My husband and I are in the process of adopting a boy ( 8 years old ) from India. We have 3 ...
How great that you can give this little boy a new life here, on this side of the ocean. This is a great place to start for getting information, now and as he ...
Hi: My name is Rosemary. I am new to this group. I have just finished reading all the messages I have received from different people from this group....
I'm really not sure if this is what it is called. I have read about another operation that sounds the same but I'm not sure. It is called a cecostomy. Both...
Hi am new to the group my name is Barbara and I have a daughter who is 7 with SB. I am have kept main streaming her in the public school system. She is a...
the site you will get more information about a cecostomy is www.cecostomy.com It is a Canadian site but I am sure you will find out all the information you...
... daughter ... under ... skin ... me. ... representatives, ... and ... any ... HI, My daughter goes to Dr Weiss at Yale New Haven Childrens Hospital and he...
... to ... having ... and ... without ... that ... 5 ... over ... the ... them ... removed ... Dpes ... im ... this, ... Dear Kevin, Check out a web site on...
