Hi, I am up in arms over a dilema I'm having. I applied for fuel assistance back in the fall and received $500 for it. I learned last month the money was all...
... Did your assistance come from the Home Energy Assistance Program? You might be able to get some help from the HEAP program. You could also ask United Way...
Hi Sharon, I am from India and I just wanted to add that my 8yr old son Vineet is also the only w/chaired student in his school.However he is lucky that his...
Hi All, I can see that Amy and the others have or have had pressure sores that are really very deep.And I don't think there is any other altrnative for such...
Hi. I am Bill from Delaware. 38, single. have SB. I live at home with my folks. I work for a major bank. If you need any other information just ask. I do have...
Jacqueline (and others), I had a small pressure sore near my SB site some years ago and did the same thing that you and your son did. Mine didn't tunnel like...
... cord and also shunted. I a not sure about the ACM though. I walk with braces and crutches. use a chair on occasion. Would like to chat sometime. You can...
... with ... this. ... we ... etc. ... promblems as you but hes only 17 months but i really like talking to ones that has been threw this hoping i can be...
Hi Sharon, My name is Kristen. I have a twelve year old girl with spina bifida. She has been diagnosed with Nonverbal learning disorder I don't know if that is...
My family just found out that our 4th and finally baby ( girl) has spina bifida. I do not know exactly which vertebre it is but as the doctor said if she was...
Hi Yvette, First of all I know things are probably getting scary but let me say congrats on getting your baby girl. How far along are you? From what you...
Hello- It was just a year ago that I was in your exact position. My husband and I found that our second child was a boy...and that he has spina bifida. His...
Hi Yvette - I would recommend that you also join SBMoms-N-Dads Yahoo group. They will be a wonderful resource for you. And continue to learn all that you can...
Hi everyone!! My name is Sarah, I am new to this group and I have Spina Bifida (L1- L2). I am 21 years old. Anyone in here fairly close to my age, although ...
Hi Sarah. My name is jackie. I am 27 years old. When I was having similar problems that you are having regarding wetting myself, the diagnoises was tethered...
Jackie
jpentland1@...
Mar 7, 2008 4:42 pm
4116
Hi Jacqueline, That's good to hear that they really go out of their way to adjust to your son's needs. You're right, it's really dangerous upstairs especially...
Hi Kristen, Matt had ACM II decompression when he was 3 yrs old, he had swallowing problems then. Hope everything goes smoothly with Taylor's surgery. I think...
Hi Jackie! Yes I would love to chat with you. I just don't know what to do anymore. I am really hoping i'm not tethered AGAIN although I haven't had that fixed...
Hi I hope you are not iether. I can not down load those programs that you were saying because not sure if they will work with my screen reader as I am totally...
Jackie
jpentland1@...
Mar 7, 2008 7:23 pm
4120
Hi Sarah, I'm Amber K. 25 with T-12 level SB, hydro, shunt, ACM-II, the works. I don't use Yahoo IM, but feel free to e-mail me at this address anytime! My...
Sharon- That surgery sounds serious I really hope he doesn't have to have it. I know what you mean-Taylor is on her 8th or 9th surgery and I just hope it is...
... I HAVE SPINA BEFEDAR R ALSO MY NAME IS MARY I AM 47.YEAR,S OLD.EMAIL ME SOON ... anymore. I am really hoping i'm not tethered AGAIN although I haven't had...
I set up a Facebook profile with my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to join Facebook! Once you...
It's amazing how our children were able to recover from all of the surgeries. Matt has very high tolerance for pain. I think I'm getting my strength from him...
Hi again! I saw Taylor's pic in the website of Children's Wish Foundation! They even granted a wish from a child from the Philippines. That would be very...
Oh cool you saw Taylor then! She had an amazing time. The make a wish foundation and children's wish foundation are two different organizations. I am sure they...
Dear Sarah, Just felt like suggesting the artificial sphincter thing ,in case nothing works out.Hope you didn't mind me intruding... Regards, Jacqueline ... ...
Jacqueline, Do you also have an artificial sphincter? Shanda ... From: renu victor <jrenuvictor2003@...> To: spinabifidacentral@yahoogroups.com Sent:...
Jacqueline, You are not intruding at all. No I do not have one and i've heard the surgery is kinda intense so I don't think I will be going that route just...
