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spinabifidacentral · Spina Bifida Central -A Place To Find Support And Share Experiences
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Messages 3804 - 3835 of 5549   Oldest  |  < Older  |  Newer >  |  Newest
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3804
I am a grandmother who took custody of my grandson. Of course he was born with spina bifida. I still dont understand alot of whats going on. I am kind of...
bonnie14770
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Dec 3, 2007
1:04 am
3805
How can we help????? What are your questions? Jenny **************************************Check out AOL's list of 2007's hottest products. ...
jenjay@...
wheelin_mom
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Dec 3, 2007
1:08 am
3806
... 2007's hottest ... NCID=aoltop00030000000001) ... i amscared my 14month grandson really doesnt have it as bad as some of these children i have read...
bonnie14770
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Dec 3, 2007
1:22 am
3807
gabriel had to undergo surgery today again.like i said i just wonder if some of these surgerys are really nessary.i am new with these promblems.he was born...
bonnie14770
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Dec 4, 2007
3:05 am
3808
Feel free to email or IM me, Bonnie. [Non-text portions of this message have been removed]...
Michael
hawkeye3180
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Dec 4, 2007
5:49 am
3809
I will not say it gets easier, but I will tell you Knowledge becomes a little clearer and that always helps me and makes it so called "easier" for me. If you...
Lisa Edmison
momofdevin
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Dec 4, 2007
1:47 pm
3810
i'm not sure how many surgeries are needed...i guess it depends on the individual's body; as for me, i am a 38 year old with sb and the only surgery i've had...
Joyce Earl
earl.joyce
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Dec 4, 2007
9:44 pm
3811
Hey Bonnie...I am Angel, my daughter is Brianah. She is now 4. Her Spina Bifida is L4L5...Can you tell us what kind of surgeries your grandsson is having....is...
Angela
amoore3596
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Dec 5, 2007
4:50 am
3813
http://tinyurl.com/88mon...
jimbomri
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Dec 5, 2007
1:02 pm
3814
Bonnie - I highly recommend the book "Spina Bifida - A Parent's Guide". This book was invaluable in getting a basic understanding of my daughter's condition...
kk_315
Offline
Dec 5, 2007
7:45 pm
3815
... all ... each ... was ... going ... they couldnt keep milk in him.so of course he got a uti and became septic the state jumped in told me they were going to...
bonnie14770
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Dec 5, 2007
10:45 pm
3816
Hey my name is dorothy and my daught ashlei is 20 months old and she has spina bifida in her L4-L5 region. First off let me tell you that you are a fantastic...
dorothy_curtis2
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Dec 5, 2007
11:53 pm
3817
Hi everyone, Just a quick question. I hear a lot about latex and how it should be avoided by SB people, why is this? ... all ... each ... was ... going ... ...
Cristina Primavera
cristieindah...
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Dec 6, 2007
4:59 am
3818
Hi: Many, but NOT all, people with SB are allergic to latex........some, like me, are just latex "sensitive", others are deathly allergic. You can find out...
jenjay@...
wheelin_mom
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Dec 6, 2007
2:36 pm
3819
Cristina - Science doesn't know why yet, but about 70-75% of persons with SB will end up developping an allergy to latex. It could be the result of having so...
kk_315
Offline
Dec 6, 2007
7:19 pm
3821
not to get off topic but i need some information. im 43 and have sb. since the untethering of my cord 18 months ago, i have lost feeling and control of my...
tony m
soxfaninri
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Dec 11, 2007
1:31 pm
3822
My "sister" Michelle also had an artificial sphincter, for a number of years. She first got it when she was about 17 years old and had it for about 10 years....
Dot McFarlane
dotmacis
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Dec 11, 2007
11:30 pm
3823
Hi not sure but my experience was having that problem before the untehtering. Once the tethering was undone I had control of my bladder again. Could it be...
Jackie
jpentland1@...
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Dec 12, 2007
1:20 pm
3824
I am interested in how many of you (or your children), with such frequent hospitalizations and medical facility contacts, are colonized with the MRSA bacteria?...
ldorley
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Dec 12, 2007
1:50 pm
3825
my son had MRSA about a year ago! he was hospitalized for 31 days 16 of which were in NICU. he was followed by an infectious disease team and was on round the...
christina FULTON
cmpopafulton
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Dec 12, 2007
2:11 pm
3826
Hi. My daughter is 9 and has had MRSA a couple of different times. Of course after you get it once it is colonized and you always have it, but are ...
AngelMKGirlie@...
johnsonangel
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Dec 12, 2007
2:35 pm
3827
at my last visit he told me i may be retethered. he also said he wont go back in because the chances are good that will become more paralyzed. i have no...
tony m
soxfaninri
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Dec 12, 2007
4:15 pm
3828
Hi I tested MRSa possitive after my back surgery in May of this year. It doesn't affect my day to day life. I wouldn't know I had it if they didn't do the...
Jackie
jpentland1@...
Send Email
Dec 12, 2007
11:12 pm
3829
... colonized ... concerns? ... a South Jersey hospital, he contacted mrsa. He had at terrible time because of it. He was in for a uti, while there he...
dysrsmry
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Dec 17, 2007
12:48 am
3830
Note: forwarded message attached. ... Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. [Non-text portions of this message have...
aveena devi
angeldevi14
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Dec 19, 2007
5:58 am
3831
hey all, i need to know how to heal a broken heart and soul. my grandmother died nov.14th of this year. thanksgiving was hard, but my family i were still in...
cj
kissbear75
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Dec 24, 2007
3:01 am
3832
Hi Everyone, I would like your help with a "girlfriend" situation. I look after my handicapped brother who is 30 years of age. He has Spina Bifida,...
Debbie Peever
debbiepeever...
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Dec 24, 2007
8:08 pm
3833
Please forgive me if I sound rude. I take it your brother's mentally handicapped as well? My 2 year old son has Spina Bifida, and my 10 year old daughter is...
snmtopazblue
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Dec 24, 2007
9:41 pm
3834
Thank you for your reply, I do not have children, but totally understand where you are coming from. How do you discipline your daughter when she does it again?...
privateeyes
debbiepeever...
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Dec 24, 2007
9:52 pm
3835
I'm so sorry, CJ..my only advice is that it will get easier..time heals. [Non-text portions of this message have been removed]...
Michael
hawkeye3180
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Dec 24, 2007
11:02 pm
Messages 3804 - 3835 of 5549   Oldest  |  < Older  |  Newer >  |  Newest
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