Thanks to those who responded to my letter. I suppose we all will have bad days, I was having a BAD one. I try to take one day at a time and believe God is the...
I to am so sorry that you are going through this. We have not reached that point yet but of course know that the day will come. Our son is almost 3. I will...
my fourth child died five years ago he only lkived he had a short time. he had a huge lesion and had massive heart problems and hydrocephely i think that...
My daughter was born with Spina Bifida so my family gets special tests done because of that, my sister never had any negetive results but her son was born with...
I am soooooo sorry for your loss. I can't imagine what you continue to go through due to the loss of your son. I have two boys both with sb, and after my blood...
Hello- My 7 week old son has SB(S1) and we have been lucky enough at this point that he is doing very well. So far he hasn't had a shunt and he seems to be...
My only advice would be to make sure you go to a Pediatric chiropractor. Two of my good friends are chiropractors, and I had asked them questions about it,...
Hey...Brianah is 4 now and when she was about 2 months old she went to the Chiropractor that my husband and I went to...He worked on her and even helped her...
Thanks for the info. Did you discuss this wiht any of her doctors or research it somewhere? Thanks Again-Stacey, mom to Samantha (2) and Miller (7 weeks) ... ...
Just out of curiosity, how did the chiropractor help with the UTI's. In kids w/ SB, what exactly would going to a chiropractor help? I am new to the board,...
I am not really sure what area he worked on for the UTI's...all I know is he said it would help and after he did her adjustment she had fewer. I wish we were...
I actually didn't discuss anything with her Dr's and I didn't research anything. I had just been going to this chiropractor for a while and he really seamed to...
jeanne im not sure what level it was ive never even seen the autopsy results the doctors at our local hospitral feel that i dont need to know i know i need to...
Our first child Catie was born this past May with lipomyelomeningocele at L4-L5. She is scheduled to have surgery September 27th. I was wondering if anyone has...
Wendy, I'm sure you do need closure. I can't imagine. I would love to have another, but scared.I'm suprised that the AFP was high since your ten week old only...
Hello, Have any of you or your children had to get a bladder sling? My five year old may possibly have to have this procedure, and I was wondering how...
Has anyone ever had collegan or restylan injected in the bladder neck? Has it worked? For how long? Does anyone (preferably male) have an artificial...
as far as an artifical spyincter valve, I had one surgical implanted, a cuff was place around the base of the bladder and a balloon was also implanted and the...
My roommate Michelle's quit working too. She first had it implanted when she was in her teens and it lasted until March of 1996, at which time during a...
Does anyone know how long the average artificial sphincter surgery lasts? ... ============= My roommate Michelle's quit working too. She first had it...
Does anyone know the statistics about Shunt placement? I know that the large majority of babies born with spina bifida need shunts but what about the number...
Hello all, This is my first post, so be gentle! I am a student training to become a medical doctor. As part of our training, we are encouraged to consider some...
Welcome to the group. ************************************** See what's new at http://www.aol.com [Non-text portions of this message have been removed]...
Hi Brian: I am Jenny, 42 and single with SB myelomeningocele. My lesion is at L1-2 and I am the mom of a wonderful twelve year old girl. I am a full time ...
My daughter Bridgette was given a shunt even though she doesn't have hydrocephalus, but because she has Chiari II and that most kids with SB do need a shunt....
Welcome, I am the mom of a child with SB Myleo L3-S1 and Hydrocephalus. I too have strong opinions n this topic please feel free to email me with your...
Hi Brian, My daughter has lipomyelomenigocele. She recently has had surgery to correct and untether her cord. I am relatively new at the whole thing, but feel...
