Hello everyone....I have some GoodNites underpants (girls) size L-XL (70-125lbs.) that I am giving away. Here's the thing I can't afford to mail these things...
Hey there, my friends. Well ... it's been a few days since my last update on Michelle so I thought I'd drop a few lines or so. She continues to improve on a...
Hey Dot, I am glad to hear she is doing so well! The behavior problems may also subside when she has a little more control of her life...right now I am sure...
Hey there, folks. Well ... Michelle had a really good day yesterday. Our church service ran longer than usual so by the time we got up there after lunch it...
Awwww I am so glad she is doing better. I can definetly sympathize with being lonely and scared at the hospital. I was that way many times when I was in the...
... with being lonely and scared at the hospital. I was that way many times when I was in the hospital as a child (heck I'd probably be that way at my age...
Hi - my name is Teresa and i am 35 years of age and live in Nottingham in England. I was born with Spina Bifida and consider myself to be very lucky in that I...
Hi I was wondering if any one else had this much problems with shunts. I just had a revision 3 weeks on the 9 of this month. Then I also had one on the...
Jackie
jpentland1@...
Aug 7, 2007 9:13 pm
3556
Hello everybody. I am a medical student at Oxford University preparing a presentation to my fellow students about the pressures and stresses of being the...
Personally and my exsperience,I am a mother to a daughter with sb her helath has been up and down through out the years with many sergries and alot of...
... shunts. I just had a revision 3 weeks on the 9 of this month. Then I also had one on the saturday before that one. I am now showing signs of some thing...
My step daughter just had a procedure called a ETV(Endoscopic Third Ventrilocostomy) rather than a shunt revision. The recovery was quick and she only had to...
Hi Jackie, May I ask where you are (state / Province?). I would say, that if you are in Ontario, and would like such information that you could call the...
I just joined this group and would like to say HI.. My husband and I have a just turned 2 year old daughter with SB. Her name is Kiya and she is level L3L4....
Hi Teresa, May I ask where you are (state / Province?). I would say, that if you are in Ontario, and would like such information that you could call the...
Welcome to the group. I am 34 with SB & H, and currently working with the Spina Bifida & Hydrocephalus Association of Ontario. Thomas ... Thomas Balsillie ...
Just to let you know how well these things do work, I had a very similar thing done when I was 11 and I am now 34 with the 4th Ventricle, and all is well...
Your family is beautiful. Kiya is doing so well. Best of luck. Amy Mommy to Tristram 8, Ariel 8, Balin 4, and Kelahna 18 months L4/L5, & shunted To:...
Hey, Welcome! I am Angel, my daughter is Brianah. She turned 4 on July 29th. She has SB L4 L5. Her closure was at birth and VP shunt put in at 3 weeks old. She...
Hello Rachel, I live in England, in Chester, and attend both the Countess of Chester and Alder Hey hospital with my daughter, aged 8, with SB at level L4/L5,...
Hi Teresa, I have not posted on here for several years, and end up posting twice in one night. I live in Chester, my almost 9 year old daughter uses AFOs - I...
... preparing ... stresses ... want ... all ... can. I ... Please ... about ... would ... benefits or ... marriage ... THANK ... Our son is 2 1/2 with a L5/S1...
Hi I am from Sarnia ontario. My neural surgion is in London Ontario at the university. thanks for the info jackie ... From: Thomas Balsillie To:...
Jackie
jpentland1@...
Aug 8, 2007 11:03 pm
3571
Angel, Thank you for sharing your pictures, your daughter is beautiful.. I really like her crutches:) Kiya at about 14 months started standing, and at about...
Hello there, folks!! :o) Well, Michelle's pretty much back to her old self and definitely ready to go back home. Her mom Johanne and sister Janet visited...
Brianah's hips used to make her legs turn completely out...she could sit and do a split actually still can but not as good...lol....and her feet would be...
WOW! Isn't God Great! He just keeps amazing me time and time again! I am so glad to hear Michelle is doing so well. I would think the hardest thing about...
Hey Danee...I was reading your post to the medical student and thought I would tell you what I do for my daughter...she used to have a BM every tine she...
I believe all Kiya's problems are from her hips as well... She has hip dysplasia in both hips, you can feel them pop sometimes. Her knees are weak too, they...
Hi, I am new to the group and seeking information for my nieceJadyn. She was an open myelomeningocele at birth with immediate closure and insertion of a vp...
