Hello! I am new to this group, as is my brother. I am trying to help my brother find some activities now that he is out of high school. He played basketball...
Hello all i am a mother to a 20 year old daughter who is going to be graduating Next year 2008 from the high school to adult hood.We are working on her...
i am looking to move out of my parents home in the next year or so with my fiance, who is also in a wheelchair, into either assisted living or an adult family...
Hello Lynn, I am an older sister to my brother who is 20yo. His SB is in the top of the Lumbar region. During high school he was very into sports and had...
Thank u very much for your input. Yes it is very scarly because as this younge children who are disable hit adulthooh it is like everyone just htinks it is not...
I am 20 yrs old and have Spina bifida L-4 L-5. I have just the past couple years been getting depressed because i dont have many friends where i live. maybe 1...
Hi, I am a mother of a 11 yearold. Reading all of the problems make me sit back and think, what will I do. In Louisiana the state will help you if you are flat...
... I am a 19 yr old girl who is getting ready to complete her first year at college and I am having major difficulties transitioning from High School life to...
Hello You are on the right track about thinking that you need someone to talk to. Yes it is a big change for you if you are used to having your prents do all...
Hi I read your posting. My name is Gale. I have so been there done that...lol I am now a 39 yr old mother of two. But, I have till this day problems Managing...
Hi: I've been reading the posts about young people with SB trying to strike it out on their own and I'd like to give anyone who is interested in hearing about...
First of all, I'm 53 years old. I've wrestled with SB since birth. I was lucky in some respects. My parents were very nurturing and cared for my well being. I...
Hi my name is jackie I am new to this group. I have a question has any one had a thethered spinal chored and then had surgery to release it? If so Did it...
jackie
jackiepentland@...
Apr 12, 2007 12:20 am
3227
Hi Jackie my name is courtney and i have had many tether chord release surgeries. some of them helped maybe for a year and others for 2 years but then i had to...
Hi there!! :o) My name is Dot and I live in Oshawa, Ontario, Canada. My roommate Michelle would like me to share her story with you. She has myelomeningocele...
NEW AD ON MAJOR RADIO STATION YESTERDAY ASKS US TO PLEASE JOIN SO THAT BABIES BORN TO SOON MIGHT LIVE. IN THIS DAY AND AGE EVERYONE KNOWS SOMEONE THAT IS AWARE...
Hi my son had tethered spinal cord surgery in 2004. He has had two shunt revisions since and is doing pretty good. He caths every three and a half hours. He...
Courtney thanks for replying to my message. Sorry it has taken so long to reply back, but I hve been having a lot of back pain the last couple of days. I...
jackie
jackiepentland@...
Apr 13, 2007 8:20 pm
3232
Hi this is jackie just letting every one know I am unsubscribing as I am get new internet provider tommorrow but will be back once am up and running again talk...
jackie
jackiepentland@...
Apr 15, 2007 6:00 pm
3233
Hi Jackie I went thru an operation last February to untether my cord. It has made me worse as i now have a No feeling in my left thigh. i am also now...
i was told that the purpose of the untethering was to stop the progression of the feeling loss. the doctor told me that i might end up with permanent loss as...
My son who is 6 months old has been having some bowel troubles. He does go but his stools are hard. We are giving him mineral oil with his juice as well as...
Well hello everyone! Little Millie Isabella Lach was born at 12:16pm on Monday, April the 16th in Children's Hospital in DC. She has Spina Bifida, and her...
CONGRATULATIONS ROBERT!!!!!!!!!!!! Jenny ************************************** See what's free at http://www.aol.com. [Non-text portions of this message have...
congratulations on the bundle of joy. ... From: jenjay@... To: spinabifidacentral@yahoogroups.com Sent: Monday, April 23, 2007 8:10 PM Subject: Re: [Spina...
are you serious? who would have that done ? conan1566 <no_reply@yahoogroups.com> wrote: HAS ANYONE HAD SURGERY TO TOTALLY SEVER THE SPINAL CORD RATHER...
Wyhen my daughter was 11 they totally severed her spinal cord just above the place it was it was tethered and just below it and they never rehoock it ,The...
