my feet are not droped now as for feeling i dont feel from the waist. alan Lori Shuereb <tonkakat123@...> wrote: May I ask if the ankle surgeries have...
I can feel both of my feet but I can't move my left foot very much and I can't curl my toes on that foot at all. I've had 2 surgeries on it but the first one...
... misinformed my son has had all of his surgeries done at a completely latex free facility. His shunt is not made of latex and neither should your childs!!!!...
98% of shunts are made of silicone or poly, THERE IS SUCH THING IN VERY RARE CASES TO REACT IN A SIMILIAR MANNER AS IF A LATEX ALLERGY, the problem I see on...
no, the problem is some people, here are not schooled enough to understand that what they know might not be accurate. i got killed on here for calling spina...
Hello all, does anyone here get nerve pain associated with their Spina Bifida? I do and seem to be taking increasing amounts of pain relief to alleviate it. I...
I also have SB occulta and have scoliosis. I also have some twiching with nerve endings. It doesnt cause me pain but can freak other poeple out if they see my...
I too deal with nerve pain, like electric shocks that go through my leg. The docs can't seem to fix it. Normal pain meds won't work because they are for...
I am 44 and have SB also .. something called Menengecole from birth. (spelling) I also suffer from back pain. Something to do with S1 and L5 positions on my...
I have a great doctor who has helped me reach a level of pain medication that actually deals with the pain - we worked our way through diclofenac sodium,...
My 15 year old daughter has battled this her entire life. Have you tried Elavil? It doesn't stop it completely... but it sure does help. She's been taking it...
I am impressed now that i know the Tens Unit has actually helped someone. I'm waiting on an appt for one of these for my daughter. Would you mind telling me...
I thought I was the only one going through these kind of symptoms. My doctor also recommended me to try Neurontin. But if it only has short term relief then...
It is so interesting how everyone that suffers from this has tried a lot of the same things and some things work for some and doesn't for others. Keep...
I've been taking Neurontin for about a month now and have found that it does help with my nerve pain as does the amytriptylene which I was very hesitant about...
Adrian, Do you have a shunt? if so you might want to have it checked on if your headaches are on the side of the head where your shunt is placed. Love,Cari ...
Hey Joe. Thanks! Hope you're doin' good too love, Cari Joe DeLaRosa <delarosa_joe@...> wrote: Hey Cari! Hope everything is well. Sorry our friendship...
Hi Cari, I don't have a shunt, I attribute my headaches to my spina bifida because pretty much everything that I tell my doctor; eg: wobbliness, balance...
Hello Everyone, I am so excited and very nervous too because I just found out that the Dr wants to bring my grandson into this world on the 21st of March so I...
Penny, My prayers are with you and your family and especially the little fellow. Jo ... From: oyamps To: spinabifidacentral@yahoogroups.com Sent: Wednesday,...
Thank you Jo for your prayers..........this is why I posted so I can start a prayer line going for the little man. Penny ... little fellow. ... that the ... ...
Hi Penny, God Bless you all!! I did the same thing when I learned our little grandaughter would be born with Spina Bifida. I sent out mass email to everyone...
I know exactly how you are feeling. The dr. wanted me to have Nicholas on march 21st of 06 and just having that date and knowing everything will change on...
I don't by any means have all the answers. However, Occulta may not be the issue you face. Just because a doctor diagnosis you with it, it does not mean, that ...
Thank you Christina for your prayers and you give me much hope because they are also saying that little Landry has a pretty bad case of sb. Yes prayer does...
Most definetly the little fellow and all of you are in our prayers good luck to you and may God bring you all the joy and happiness in the world. Lisa ... ...
Penny: Our prayers are with you and your family............all will be just fine, I'm sure!! We'll be here for you to lean on with support and advice in the...
