HI Jaime, I'm just catching up on weeks of email, i'm such a procratinator !!! I'm sorry to hear that you were so down right before Christmas, I really hope...
... this is my first time talking about SB.I am 22 it is not a serious form of SB but i think why me aswell.i am really on this site to talk to people in the...
this is my first time on a site like this.i am a 22 year old man with SB.I have never talked to people like me becase i have never interacted with people with...
i think we need to be careful when giving advice or comparing ''war stories''. since there are many forms of sb , i feel that if someone doesnt have my form,...
hi, ide like to know how severe your sb is. i went to the same schools as my 2 non sb siblings but i coulsnt play sports and i never dated due to the many...
Hi, I'm actually the mom of a 9 month old son who was diagnosed with Spina Bifida, Tethered Cord Syndrome, and Congenital Dermal Sinus Tract. He had his...
... schools as my 2 non sb siblings but i coulsnt play sports and i never dated due to the many issues i have due to sb. tony, i am 42. ... on a site like...
Hi Brenda, When you say that you son cannot stand, do you mean when you put him on a flat surface, he will not bear weight on his legs? And don't forget, just...
Hi, Most of the time his legs are like jello, but every once in a while he'll stand on them (although bowed). He had several masses removed that were on his...
I am from Ottawa Ontario Canada. I am 39yrs old. I have Spina Bifida and Hydrocephalus. I am able to walk but I use a walker., mainly because of my balance. I...
Nancy I have experienced what you are with your shunt. I actually went 18 year with out having a problem and then had problems for a few years after that. When...
im 42 and have had 7 shunt revisions. i have never had sick stomache or any of that. i only get huge headaches when it needs service . my last rev was 6 years...
Hello, my 14month old daughter has spina bifida L5-S1, chiari II decompressed twice, hydro/vp shunt, tracheostomy, g-tube, central sleep apnea, and a syrinx....
Tony, I guess what I mean is the neurosurgeons don't know if the surgery will help or cause more problems, so they are leaving it in my hands to know what to...
Hello, My 9 month old son also has a syrinx which has been left alone for 7 months. (L7)He had his SB corrected along with detethering of his cord and...
I am a 30 year old male from Ohio. The name is just a play on words, my buddy couldn't remember the real name of my disability. Sorry, really don't know what...
Hi i joined awhile ago but this is my first post,i am 36 with s.b. the information i have read on the site has been very useful, as i have been thinking about...
Welcome April I am Christine also 36 year old. I walk with braces and crutches but for distance I use a wheelchair. I had the TC surgery at the age of 18. Only...
Hey gang, I have been reading the journals and posts for a few weeks now. My wife and I found out that our unborn child has Spina Bifida just a few weeks ago....
if your in the united states , you cannot be denied treatment for any health issue even if your broke. its the law.you get treated, and the chase is on for...
Robert, I am glad to hear that you are going to keep the baby. I won't tell you that life is going to be easy. But this baby that your wife is about to have is...
Robert my name is Deborah. I am 39yrs old. The doctors told my folks when I was born that I was going to be in a wheelchair. Then they said I was going to be...
Hi Christine, I am from England, i am in the process of having Botox injections in my leg, my left side being the problem as any one had this done also....
Hi Deborah! I am Robert, 38 years old. You certainly don't write like anyone "mentally retarded" (their words, lol). I am a horrible typist, but when I do...
Robert to answer your question where i am getting the operation done? If you mean which hospital i dont know which one. As far as where well of course right...
i havent been called for it yet. My new neurosurgeon that i just saw last week on wednesday i think it was., only saw me then and it was he who recommnded that...
Hello everyone if some of you dont remember im a 28 yr old with spinabifida. Im from mitchell south dakota. I have a 3 yr old son who is very healthy i thank...
I have exhausted my ability to go through the process again. I can not work during the time of aplication or the appeals process. I would have to be...
