Hello. are there any men out there in thier late 30's who have SB,Please if u r there give send me a short email just to know u exist.Kathy.my email is...
1. What is your highest level of education and how was is financed? associates degree in respiratory therapy, music lessons-church organist, auto detailer-self...
Hi Jennifer, My son started using a prone stander around 12 months of age. Is that the same as a standing frame? If so then I will tell you that we were...
I am so glad that this site is available again! I hope that everyone is doing great! My first question is about shunt revisions. Has anyone had their child...
Our 15-month-old daughter has a parapodium (similar to a standing frame) and a dynamic stander (also called a mobile prone stander). Her orthopedic surgeon...
... dsughter who is 3 just had one abut 3 weeks ago. She was in the hospital for about 3 days. She is doing great and it seems to not have affected her at...
Hi Jessie, My son has been through the wringer when it comes to shunt revisions. The first few years of his life he had quite a few ever year. As for being a...
Hi, My daughter has to be cath about 4 times a day and we use a new catheter each time. I was wondering where some of you get your catheters from, they are so...
--While there are waithing list you should look into state and city programs. Here in San Antonio, Texas there are a lot of programs. CLASS, MDCP ect...- Some...
Thank you Jacqui and Treetoad for sharing your experiences with me. It helps so much to hear other's stories and what has worked for them and to know that we...
HI Jessie! My daughter Jazmin is two also.She just went through the revision back in December of last year. Her shunt was clogged on the top of the shunt by...
Hi, My daughter has sb and she takes lamictal, levsin, and macrodentin daily. For the past two days she has had a bloody stool, has anyone every had this...
Hi Jennifer! I wish that I could give you some positive info on the third vent, but my son had it done and it never worked. He ended up having a different...
It could be an irritated bowel from the medication or possibly a hemorrhoid. Hemorrhoids can happen easily because of the bowel issues people with SB face. I...
Hi Cynthia, My daughter Jazmin had that before. The Doctors said it was called C-diff. It happens when the bad bacteria eats up the good bacteria. It is from...
Well folks went to court today left the house a 11 to go and pick up my mri in case i needed them went to lunch then to the tribunal (court) i arrived 1/2 hour...
All new server, all new look, lower prices, added quotes and our own domain! No more site being down! Are you tired of the gimp gawking idiots staring at you...
$15.00 a Shirt! Are they screenprinted or transfers? (I am a screen printer) A bit of advise about your web site, you may want to create a "warning" section...
My daughter has had a back wound verying in size since 1996 when she had a spinal fusion and the hospital staff allowed it to get infected. It almost closed...
My son (who is 15)had bladder augmentation and the Ace procedure done April 26th. He had so many complications that we ended up staying in the hospital 16...
... both like your son). She was in the hosp for 19 days. She had a few added for an infection at the site. Except for the fever she had no probs and still...
Hi there Group, I'm A father of a 4 year old girl that has SP. She is doing realy good so far. I was told long time ago that when she was younger she didn't...
Hi there Group, I'm A father of a 4 year old girl that has SP. She is doing realy good so far. I was told long time ago that when she was younger she didn't...
Please, can somebody tell me what the hairy patch on the lumbosacral region looks like for sp occulta? My 4 month old daughter still has a hairy patch on her...
