Hi mom2sbdaughters, I suppose I am one of the lucky ones, b'cos my daughter's defect on her back was closed, she had no spine exposed. It is just a small...
My son has L3-L4 and he has no feeling from the waist down. And I am confussed they said his other level was a t-2 - t3 but it is really high almost by the...
Well you answered all my questions by your comment Mom2sbdaughters - my son thats three w/ SB he's lesion is at L3-5, so who knows what will happen with the...
when i was born , im 42, the doctors told my parents ide never walk, ide be retarded , or i wouldnt see age 1. well, they are 0-3 . i have worked all my life...
No, she does not have that problem, but she is defintely a shortie. Oh well.. she was at birth, now she has caught up. Lisa Kay Edmison <cherubs78@...>...
Not necessarily, Anna. For example, I have a myelomeningocele at L4-L5 but I am not paralyzed and I have most of the feeling in my one leg, but not in the...
Same here, the docs said I would never walk (wrong), they said I would need to go to special schools (wrong), and that I would be learning disabled (wrong...
Hi I'm Jan and I was born with spina bifida 57 years ago.(I'm an old one) I was operated on the day after my birth and I had to wear leg and feet braces, my...
Hi Y'All, Kidron had a baseline CT scan taken last week and one doctor felt like his ventricles appeared to be enlarged. I brought a copy to his nuerologist...
... felt like his ventricles appeared to be enlarged. I brought a copy to his nuerologist for him to compare it to pics taken previously (ultesound approx. 2...
... see ... worry ... is ... list ... Kidron ... the ... probably ... be ... Sasha ... been ... came ... let ... don't ... Hey, What doctor said it was...
My email has been getting flooded by emails from this group.I think something is wrong I,m getting info that i think only the main office to this group should...
hi my name is courtney i just had shunt surgery in august because my ventricles were big then small then big again in just one week it turned out that a piece...
You know these other moms and dads have given me some good advise and much appreciated encouragement, but Courtney, your email gave me a comfort and hope that...
your welcome i know excetly what he is going thru i have had many sugeries and only 2 on my shunt mostly for my spinal chord untethering it gives me trouble...
I am a mom to a 19 year old daughter , lately she has had some problems with sore on her feet , it started out as a scratch about a month ago and has turned...
Hi, I'm Patty. My daughter is also 19 with SB. We've had a few situations where she's developed ulcers. She walks with BKO's and crutches. A few years ago,...
... a ... had ... up? ... of ... let ... have ... clean , ... me ... Lynn, My daughter is 10 and she got a sore from crawling on the cement. We started out...
Thank you for all the information on the healing of kids with sb and there sore sincerly, Lynn--- In ... about ... healed ... dry ... or ... and ... give ... ...
if she's not walking its probably due to poor circulation I know that I have had this problem off and on over the years of my life. in my case they are due to...
I'd like to thank everyone who helped form a list of questions for the nuerologist today. Kidrons CT scan did show fluid in his venticles - they were enlarged...
hi i am 19 and have sb and also have poor circulation. what do these sores look like?because my left foot swlls up and gets red i want to know what it might...
I am a Mother of a ten year old who is not a normal spina bifida child. She has only half her spine affected by it, so she has normal bladder function but the...
It was explained to us that Kidrons sphincter and valves going to the kidneys are strong. They felt that he would be able to "go to school wearing normal...
Courtney, The sore on her foot is and ulcer it has been really big it took up her whole big toe not that she has a very big on anyways and it is very deep...
hi my name is courtney and i am 19 yrs old and have to take dirtropan also know as oxybutin i cath myself like 3 times a day. the doctors say i should do it...
WHen I was 9, I stepped on a rock. The doctor said it was a stone bruise, but with my sb and poor circulation, he said it would take longer for it to heal....
