Hi, I am looking for any help ,opions,and experience any one can offer. My son and his fiancee found out on Thursday they are carying a baby with Spina Bifida....
Hello , I am sorry you are so devistated by your family being in a baby with spina bifida, I am a mom to a lovely 18 year old daughter with spina bifida , i ...
My daughter is 17 with SB, and I can honestly say now that her birth was a blessing. Had we known about the SB prior to her birth, we probably would have...
Devastated? OH MY GOSH! Don't let them be devastated! A spina bifida child is as WONDERFULLY MADE as a "NORMAL" child. Their child will be so special in...
I'd like to also add something to this impending (I HOPE NOT) tragedy.......nobody ever knows the accomplishments that a child with spina bifida can work out...
Hi, I hope this repply is not to late. I have 3 years old daughter that have spinabifida, I think your son just experience something very similar to me, even...
All my relationships have been with people who do not have a disability. I don't think it matters one way or the other, disabled people can be hurt in a...
In response to silverleaf003; I have a beautiful little girl who has spina bifida. She is 4 yrs old, and turns 5 in November. She is smart, bright, funny, and...
I have 2 adopted daughters with SB and am trying to adopt another one now. My girls are both paralyzed from the top of the legs down but have no difference in...
... bifida child is as WONDERFULLY MADE as a "NORMAL" child. Their child will be so special in every single way, it is hard to fathom the fantastic gift they...
My parents were told the same thing about me. (That I would never walk.) Well, 38 years later, I do walk unaided. I hold a full-time job and pretty much live...
Just out of courosity why would they want to terminate the pregancy. My son is Five years old with Spina bifida and he play t-ball, and rides horses for fun....
I am glad everyone is still on here, I agree I have not heard anything in such a long time, I thought it was closed down. Glad everyone is giving such...
I like that! That's awesome. i"m not a parent, if you saw me live my life i think it would be apparent that i'm not a parent, but I do think that I am a...
Please don't have the pregnancy terminated. I was born with spina bifida myself and have had problems, yes, but I'm still here at 42 years old. Brenda john...
Hi,I have a 20 year old grandson born with spina bifida,he has never walked,never run,but he has and still is a joy to my heart.His name is William,he has had...
I'd have to answer yes to the question about relationships with people who aren't disabled. Seems like people who are "normal" look at the wheelchair and not...
My suggestion would be have him drink more fluids. that adds to the bowels and will soften them so if you can get him to drink more then that would be a mighty...
Our daughter is 7 now, and she needs splints to walk, uses a wheelchair to go distances and is incontinent, but we would not be without her for the world. Yes...
here is a totally wonderful page i hope you all visit, about the aspects of spina bifida and how it can positively change your life in such wonderful ways that...
I too would like to responsd to the doctor's suggestions to terminate a pregnancy. FIrst of the question has to be asked "what is normal" because if you look...
I totally agree with this. Despite my disability, I've been able to accomplish so much in my life. I'm even working now and that was something I didn't think...
The doctors can tell you that a child is going to have Spina Bifida, but not to what extent. When I was born 38 years ago, my parents were told I would...
Lisa, I am a grandmother to Makenna Rose w/SB...www.MakennaRose.org , her pictures after birth speak more than words. Makenna or as I like to call her, Rosebud...
Marsha not sure, I love your story, but I think you meant to send it to silverleaf.. but I will check your granddaughter out and I know know exactly what you...
Others have explain about a lot about having spinabifida family is fine, so I won't add more story there, for me there is one more aspect that stress me a lot,...
I hope I'm not too late with my response since it's Wednesday already. Oh goodness, do I ever understand these feelings! It was just about a year ago that we...
The doctors at UCSF were able to tell us where the lesion was located and even before birth the outcome...which has been pretty accurate. We love the doctors....
