Hello, My name is stephanie.My son's name is matt.He is 8 months old. HE was born with spina bifida level 3 and club feet. He has a shunt. He is having surgery...
This upcomming Mothers Day (14th)of May my grandson will turn two years old ! We have been through much with him. His mom is a real trooper. But on the 13th...
hi stephanie my name is amy my daughter was also born with spina bifida and club feet. who is doing your son's surgery, my daughter has had serial casting but...
Hi Sue, I also am looking to make new friends with Spina Bifida. My name is Brett,I also am female and 22 years old. I just moved to Ballwin, MO from Denver,...
hi iam 35 years old and i had a MRI not to long ago however the finding was not in my favor . my cord was tethered and they wants me to have surgery and i...
How was the performance? Did they have good support from the community? Best of luck with it all. It sounds like you are a great support to your daughter and...
... years ... prefomance ... The preformance was a sell out ! The audiance cheered and clapped, much money was made and when everyone left everone was tired....
I JUST had my SIXTH Tethered Cord surgery!!! If you want to chat about it feel free to IM me or email me anytime!!! God Bless, Pastor Mindy,D.M. ... out...
Hi Amy. Matt was born at lsu in shreveport louisiana. That hospital automatically sends babies with any limb problems to shriners hospital.They xrayed matt and...
Hi, I am looking for any help ,opions,and experience any one can offer. My son and his fiancee found out on Thursday they are carying a baby with Spina Bifida....
Hello , I am sorry you are so devistated by your family being in a baby with spina bifida, I am a mom to a lovely 18 year old daughter with spina bifida , i ...
My daughter is 17 with SB, and I can honestly say now that her birth was a blessing. Had we known about the SB prior to her birth, we probably would have...
Devastated? OH MY GOSH! Don't let them be devastated! A spina bifida child is as WONDERFULLY MADE as a "NORMAL" child. Their child will be so special in...
I'd like to also add something to this impending (I HOPE NOT) tragedy.......nobody ever knows the accomplishments that a child with spina bifida can work out...
Hi, I hope this repply is not to late. I have 3 years old daughter that have spinabifida, I think your son just experience something very similar to me, even...
All my relationships have been with people who do not have a disability. I don't think it matters one way or the other, disabled people can be hurt in a...
In response to silverleaf003; I have a beautiful little girl who has spina bifida. She is 4 yrs old, and turns 5 in November. She is smart, bright, funny, and...
I have 2 adopted daughters with SB and am trying to adopt another one now. My girls are both paralyzed from the top of the legs down but have no difference in...
... bifida child is as WONDERFULLY MADE as a "NORMAL" child. Their child will be so special in every single way, it is hard to fathom the fantastic gift they...
My parents were told the same thing about me. (That I would never walk.) Well, 38 years later, I do walk unaided. I hold a full-time job and pretty much live...
Just out of courosity why would they want to terminate the pregancy. My son is Five years old with Spina bifida and he play t-ball, and rides horses for fun....
I am glad everyone is still on here, I agree I have not heard anything in such a long time, I thought it was closed down. Glad everyone is giving such...
I like that! That's awesome. i"m not a parent, if you saw me live my life i think it would be apparent that i'm not a parent, but I do think that I am a...
Please don't have the pregnancy terminated. I was born with spina bifida myself and have had problems, yes, but I'm still here at 42 years old. Brenda john...
Hi,I have a 20 year old grandson born with spina bifida,he has never walked,never run,but he has and still is a joy to my heart.His name is William,he has had...
I'd have to answer yes to the question about relationships with people who aren't disabled. Seems like people who are "normal" look at the wheelchair and not...
My suggestion would be have him drink more fluids. that adds to the bowels and will soften them so if you can get him to drink more then that would be a mighty...
