Hi! I am the mother of a 14 month old with L3 SB named Theo. Theo is in HKAFOs. He is able to stand and hold onto a walker. The SB clinic has recommended...
With both of my girls I made a game out of it. Since his hips are locked he will swing through. This is what I did. I put a ball in front of my girls and...
With both of my girls I made a game out of it. Since his hips are locked he will swing through. This is what I did. I put a ball in front of my girls and...
Hello, there! My name is Mindy (or Pastor Mindy, whichever you prefer) I have SB as well...I don't really know much about HKAFOs or anything ike that, as I...
Here is the address to my Ministry site, if anyone is interested... http://netministries.org/see/Charmin/CM08890 Thanks for your time and God Bless, Pastor...
My name is Rachel and I have a 4 year old with SB occulta. She was diagnosed about 21/2 years ago when we went to the orthopedic hospital about her left foot...
I would find a good neurosurgeon and have a MRI and check her for a tethered cord. 99% of SB occulta patients problems are fixed by dethering the cord. Cindy ...
HI Cindy! Thanks for your message. It is quite difficult to get anywhere here in England. They have said that they will give jane a MRI but not yet! I think...
Hello, Rachel! My name is Mindy (or Pastor Mindy, whichever you prefer)I am a 34 year old woman with SB. I have Neurologic Bladder and I cath every four hours....
- Hi Mindy! Thank you so much for your reply. We actually live in Oxford, England! It is very difficult here to choose a nuerologist or a Urologist although I...
England!? Wow! How neat! I don't know anything about the medical care in England, so I am not sure what you should do to get yourselves a Neuro-surgeon... ...
Thanks for the message Mindy! I will have to look into the neurosurgeon bit...things here are so complicated as everything has to be referred and you...
I would like to welcome all the new members , I hope everyone is doing well as the New Year has started. I am mom to a 18 year old daughter with sb .If anyone...
Rachel, I don't know if you have this already or not, but to IM, you HAVE TO have Yahoo Messenger downloaded onto your computer. It's free and easy to do, if...
Hiya. My name is Sarah. I am nearly 22. I live in Manchester. I have a mild form of spina bifida and i have scoliosis. I am doing a life skills course at...
Ok i fixed my name thing, once again sorry for that. I was wondering if anyone nows about any free clinics in the LA OC area in California cuz Medi-cal droped...
Thank u for fixing your name but please stop posting the message that had the bad word on it, This is a family sight and no one wants to see that kind of...
Hello everyone, I hope everyone is doing well. I'm very sorry I haven't been around lately. I have been quiet busy with things. I am posting this message to...
Hi Elaine! My name is Rachel and I live in Oxford, UK. I know what you mean about lack of info and people to talk to I have the same problem which is why I...
Welcome all the new mebers to this group.I wish you all luck with information and making new freinds here there is alot of wonderful prople with lots of...
I am a new member here and just wanted to introduce myself. I am 34years old, single, live in the UK and have SB. I found this group while I was searching the...
Hi Delight! My name is Rachel and my daughter Jane is 4 and has SB. I also live in the UK. It does not surprise me that you have had no support, we are having...
Hey everyone! I have to relocate in about 2 months, doctor mandated, so I can be under close observation prior to my c-section. I don't know if our insurance...
Hi. I started with chicken pox last Tuesday (10th). I got them off my cousin as he had them recently. On Saturday it was my 22nd birthday we were going to go...
Welcome, Delight! I am Pastor Mindy, of course, as you know, we have already spoken and (I think) become fast friends. I just wanted to take a mintue to ...
Greetings, Maggie! Welcome to the club! I am Pastor Mindy, a 34 year old, Ordained Minister(woman)with SB. You are welcome to IM me anytime, if you would like...
Hello all I am a new member and just wanted to introduce myself. My name is Jaime'. I live in IN. I am 34yo./SB. I am looking for support and some one to...
