Hi! I am a 19 year old female and I was born with Spina Bifida. I saw this group and wanted to join because it would be nice to meet some people with the same...
I just want anyone and everyone here to know that if they need someone to talk to who "has been there", I am MORE THAN willing to talk to ANYONE who needs to...
I just recently found out that my daughter is going to be born with Spina Bifida. I found this support group and decided to join and see what all I could learn...
Hello Nice to have you join this group. If you would like to talk you can e-mail me or im me at teeanna1989 . I am a mom of a 18 year old with sb--- In...
hey*** about this time last year i was getting ready to have a baby girl that was going to be born with spina bifida and hydrocephalas, i was really scared but...
Hello everyone!! First of all, I'd like to re-introduce myself for all of the newer members. My name is Nicole. I was born with Spina Bifida. I also have ...
Hi Amy! I am sorry it has taken me a long time to get back to you. My husbanf just came home from Iraq and we are spending some time with him. You can instant...
I went to the doctor today and all she could really tell me is that the SB is in the L5 zone. I have another specialist appointment on the 18th of Jan. I am so...
Hello Jamie, Here is a little easier understanding of what you have to look forward to in having a child with spina Bifida...Arnold-Chiari malformation, or...
Hello everyone!! First of all, I would like to wish everyone a Merry Christmas and a Happy New Year!! Secondly, I was just looking for an opinion on something....
Hello everyone, I am writing to with everyone a Merry Christmas and a Happy New Year!! I would also like to let everyone know that I have decided go to Digest...
I had tethered spinal cord surgery as a teen and within the last 10 yrs or so have developed pain in my lower back in or near where the surgery was done,does...
I have coverage through the VA,they say they will cover anything directly related to SB but my doctor will not write a letter viewing her professional opinion...
Hello everyone, I am writing to with everyone a Merry Christmas and a Happy New Year!! I would also like to let everyone know that I have decided go to Digest...
Do you have VA coverage do to the Agent Orange Act? I do, and so I was going to tell you how it works for me... Anytime you go to the doctor for anything SB...
Do you have VA coverage do to the Agent Orange Act? I do, and so I was going to tell you how it works for me... Anytime you go to the doctor for anything SB...
Hi! I am the mother of a 14 month old with L3 SB named Theo. Theo is in HKAFOs. He is able to stand and hold onto a walker. The SB clinic has recommended...
With both of my girls I made a game out of it. Since his hips are locked he will swing through. This is what I did. I put a ball in front of my girls and...
With both of my girls I made a game out of it. Since his hips are locked he will swing through. This is what I did. I put a ball in front of my girls and...
Hello, there! My name is Mindy (or Pastor Mindy, whichever you prefer) I have SB as well...I don't really know much about HKAFOs or anything ike that, as I...
Here is the address to my Ministry site, if anyone is interested... http://netministries.org/see/Charmin/CM08890 Thanks for your time and God Bless, Pastor...
My name is Rachel and I have a 4 year old with SB occulta. She was diagnosed about 21/2 years ago when we went to the orthopedic hospital about her left foot...
I would find a good neurosurgeon and have a MRI and check her for a tethered cord. 99% of SB occulta patients problems are fixed by dethering the cord. Cindy ...
HI Cindy! Thanks for your message. It is quite difficult to get anywhere here in England. They have said that they will give jane a MRI but not yet! I think...
Hello, Rachel! My name is Mindy (or Pastor Mindy, whichever you prefer)I am a 34 year old woman with SB. I have Neurologic Bladder and I cath every four hours....
- Hi Mindy! Thank you so much for your reply. We actually live in Oxford, England! It is very difficult here to choose a nuerologist or a Urologist although I...
